|
EPILEPSY
?
A Major Neurological Condition
�
Behavioural Science
http://www.shangaris.com/new_page_1.htm
Project
Prepared By:
Panicos Shangaris
E-mail:
shangaris@yahoo.com
A Major Neurological Condition
Epilepsy
1.1 Generally:
The word epilepsy is derived from the Greek verb (epilamvanein)
("to be seized," "to be taken hold of" or "to be attacked"). In
ancient Greece, as now, people spoke of "having seized" and of
having had an "attack." This terminology derived from the even
older notion that all diseases represented attacks by the gods
or evil spirits, usually as punishment. Even in comparison with
all the advances made during the last century—more than at any
other time in history—consider how enormous and fundamental was
that first step attributed to Hippocrates in about 400
bc: that epilepsy
is a disease of the brain that must be treated by diet and
drugs, not religious incantations.
Epilepsy is, of
course, not a specific disease, or even a single syndrome, but
rather a broad category of symptom complexes arising from any
number of disordered brain functions that themselves may be
secondary to a variety of pathologic processes. The terms
convulsive disorder, seizure disorder, and cerebral
seizures are synonymous with epilepsy; they all refer to
recurrent paroxysmal episodes of brain dysfunction manifested by
stereotyped alterations in behaviour.
Today, a large
number of clinical phenomena are recognized as epileptic
seizures, some of which (e.g., myo-clonic and atomic
seizures) are currently poorly understood and might, in fact,
reflect neuronal mechanisms that are somewhat different from the
path physiologic processes traditionally considered to be
"epileptic." A variety of conditions or epilepsies have
been categorized and defined not only by the types of seizures
they manifest but also by other, associated clinical features.
Specific epileptic syndromes have been identified by
their characteristic seizure types, pattern of seizure
recurrence, age of onset, associated neurological and other
clinical signs, electroencephalographic (EEG) findings, presence
or absence of familial occurrence, and prognosis.
1.2
Classification:
They are useful in helping us in the treatment and counsel of
our patients and/or enable us to understand the basis for a
patient’s epileptic seizures. Similar ictal behaviour changes
can result from different substances in relation to treatment
choice is not as clear as we like to believe. The limitations of
seizure classification is that it describes common seizure
phenomenology only.

Different types of epilepsies are shown below:
Generalized Epilepsies:
·
Benign myoclonic in infants
·
Juvenile myoclonic epilepsy
·
Childhood absence epilepsy
·
Juvenile absence epilepsy
·
Epilepsy with generalized tonic clonic seizures in
childhood
·
West’s syndrome (infantile Spasms)
·
Lennox Gastaut syndromes
·
Epilepsy with continuous spike and waves in slow wave
sleep (ESES)
·
Landau Kleffner syndrome
·
Rasmussen’s syndrome
·
Epilepsy and inborn errors in metabolism
1.3
Aetiology:
Epilepsy occurs when nerve cells in the brain fire electrical
impulses at a rate of up to four times higher than normal. This
causes a sort of electrical storm in the brain, known as a
seizure. A pattern of repeated seizures is referred to as
epilepsy. Basic research aims to identify viral, genetic, or
other factors that cause epilepsy. These findings provide the
basis for developing new and improved methods of prevention and
therapy.
Scientists are using promising new technologies such as positron
emission tomography (PET) and magnetoencephalography to diagnose
epilepsy and pinpoint seizure location.
1.4 Drug
Treatment:
Medication controls seizures for the majority of patients, who
are otherwise healthy and able to live full and productive
lives. On the other hand, at least 200,000 Americans have
seizures more than once a month. Their lives are devastated by
frequent, uncontrollable seizures or associated disabilities.
The goal of modern neurological research is to develop safe,
well-tolerated drugs that control seizures. Basic research has
brought some of the now more commonly prescribed anticonvulsant
drugs to the market. Scientists are also developing ways to test
new and better drugs in patients.
1.5 Surgical
Treatment:
This form of treatment,
performed at epilepsy clinical research centres, is now an
option more available for people with epilepsy, including
children. For patients whose seizures cannot be controlled with
drugs, surgery can turn the dream of a seizure-free life into a
reality. Improved technology has made it possible to identify
more accurately where seizures originate in the brain and to
what extent surgery may affect vital functions, such as smell
and speech.
1.6 Other Types of Treatment:
Neurostimulation and especially Vagus Nerve Stimulation (VNS).
VNS is now an accepted therapeutic alternative for patients with
difficult-to-treat seizures.

Fig. 1 Sagittal, spin-spin,
magnetic resonance. An astrocytoma with refractory frontal lobe
epilepsy.
1.7 Social
Issues:
Although considerable progress has been made relative to the
social adjustment of people with epilepsy, there remains much to
be done. Considerable challenges face those in less
industrialized countries in which some of the issues in
discrimination, employment, and so on, are only recently
becoming obvious and receiving media attention. As discussed by
Ceilings (1994), we are only at the beginning of examining
international differences in psychosocial well being and
quality of life for this population. The challenge remains to
not only identify these differences, but marshal available funds
in order to mount education and the other psychosocial
intervention efforts that currently are lacking.

1.8 Psychiatry and
residential care:
On the site of the traditional countryside residential setting,
services are being developed to provide residential assessment
away from the clinical atmosphere of the hospital. Epileptic
patients with challenging behavioural and learning disabilities
can undergo specialized assessment and treatment in this
setting. A special role in the future might be found for work in
the field of forensic neuropsychiatry. Certainly the trend to
shorter, focused admissions will continue, with the centre at
the same time reaching out to the community and offering
preadmission services and post-admission follow-up. Some
epilepsy centres in Europe are actively developing provisions
for care in community projects by establishing small living
units that are closer to patients, friends and families.
Although residential schools are taking on the function of
short-term assessment and rehabilitation, it is likely that at
least some children with complex epilepsy and associated neuro-
psychiatric problems will receive a large part of their
education in such places. Epilepsy centres will continue to be
involved in teaching and research. The question remains whether
truly integrated services comprising health, social work, and
education can continue to thrive in a social market. Only time
will tell.
1.9 Social aspects,
stigma, beliefs…
The following review yields some suggestions for ways
clinicians can reduce the stigma attached to epilepsy.
Patients are taught how to describe and manage their condition
when they are first told about it. The clinical view is not
imposed on the patient, but rather patients' beliefs fears about
their condition and its diagnosis, treatment, and outcome, are
explored. Epileptics can be marked by todays society due to
their constant need for medication and medical care. Especially
among children, medications are eliminated as soon as possible.
Taking drugs may be a way to reduce conflicts with parents, and
visits to the doctor may be prompted by a desire to keep a
driving license rather than to take medication. A patient's
family and social network have to be considered as an important
source of support or discouragement for medical treatment as
well as social and psychological adjustment. Patients have to
be sent to other expert sources of assistance, vocational
rehabilitation counsellors, psychological counsellors,
self-help groups, family therapists, nursing staff and social
workers
1.10 Social and Psychological Problems:
If parents are overly
protective and concerned about the possibility of a seizure,
they may over restrict the child’s activities and hinder the
development of life skills. For example, children with epilepsy
have been found to be more parentally dependant than children
with tonsillectomies.
Empirical research carried out to identified factors associated
with social dysfunction in persons with epilepsy identifies the
following as risk factors:
|

|
Severe and
frequent seizures. |
|

|
Presence of
other conditions or deficits. |
|

|
Academic
underachievement. |
|

|
Chronic
condition. |
|

|
Negative
attitudes toward epilepsy. |
|

|
Lack of a
supportive family environment. |
The ultimate goal of support services is to help people with
epilepsy and their families become as socially capable and
competent as possible. There are three general guidelines to
consider when making decisions about which services to use:
|

|
Comprehensive
assessments to identify social problems should be
carried out on a regular basis. |
|

|
Early referral
for services is recommended to prevent social
difficulties. |
|

|
Support
services should be matched to specific needs
of the persons with epilepsy and their families. |
Although many people with epilepsy function well socially,
others experience myriad problems. Comprehensive assessments
should be carried out on a regular basis to facilitate early
identification of social problems and referral for
rehabilitation services.
1.11
Conclusion:
There's still, commonly, the concern that epilepsy is
contagious, that epilepsy necessarily means that someone will
have brain damage, that epilepsy makes someone unfit to
reproduce, to parent, which is not true."
However, the potential
of new investigative tools, especially those of brain imaging
and molecular biology, are providing unparalleled and
unimagined insights into the mechanisms of epilepsy and
epilepsy-related brain dysfunction, and are offering greater
hope than ever before for prevention, effective treatment, and
even cure.

Word Count: 1492

2.1 Questionnaire for Medical Professionals
On Epilepsy as a Major Neurological Condition
1. Can you tell us what actually Epilepsy is?
(i) Can it be
considered as a disease, psychological problem, virus, mental
disorder, or anything else you have in mind?
(ii) Is it inherited?
(iii) Are there a lot of types of Epilepsy?
2. Could you tell us something about epilepsy in ancient
Greece?
3. Could you give us a rough idea of how common is in
Cyprus?
4. Does Epilepsy occur in all the ages or is it specific
to some?
5. How do patients respond to their diagnosis?
6. How
do these kind of patients appear in their active lives? I mean
physically, socially, mentally and psychologically.
7. What are the possible causes of Epilepsy?
8. Do
you think patients experience problems with their work if not
why?
9. Does
Epilepsy influence the relationships of the patients with the
people they are dealing or work with? If yes, what do you
suggest they do about it?
10. Is
there any specific treatment for dealing with these patients? If
yes, what is this way of treatment?
11. What is the importance of family, friends, and
relatives in the support of these patients?
How can they
help?
12. Are there any specific intensive care units at the
hospital for treating epileptic people?
(i) If yes: what's the hospital programme?
(ii) If no: Should they have a program? How should the unit be
organised (under what conditions?)
13. How do you think society treats these people?
(i) Is there any kind of discrimination?
(ii) Is our society well informed for Epilepsy?
14. What possible problems may develop in the families of
those patients?
15. Are there any economic problems faced by epileptic
people?
16. How would you personally treat an epileptic patient?
(What do you suggest is best for the patient?)

Patron saints of
epilepsy
Saint Antonius

2.2 Questionnaire for Patients
On Epilepsy as a Major Neurological Condition
1.
Can you tell us in your own words what Epilepsy actually is? Do
you know why you have this condition?
2. When
was the first seizure? What was your reaction when the doctor
diagnosed the condition as “epilepsy”, your first thoughts?
3. What
was the reaction of your family? Did they change their behaviour
towards you? Did they begin to be over protective? Do you think
that this over protectiveness had a negative effect on you?
4. How
often do you have seizures and what is the reaction of the
people close to
you?
5. Do
you think that your behaviour has changed; from the day you were
diagnosed with this condition? If yes, how?
6. In
the workplace (school) what is your colleagues (classmates)
reaction to your condition.
7. Do
you have any problems with your job or your performance, because
of this condition?
8. What
was the reaction of your superiors? Do they have different
approach for you, rather for your colleagues, or they just
ignore your condition?
9. Any
problem sleeping, nightmares maybe?
10. Do
you feel that your friends discriminate against you? (Negative
or positive) Do you have any problems in making new friends?
11. Do
you feel that you are stigmatised by your condition. That is all
that people are thinking about when they see you?
12.
Comment on the fact that in some countries like Russia and
Japan, driving is prohibited, by law, for people with medical
history in epilepsy. (Literature)
13. Do
you know how epilepsy can be treated?
14.
What kind of drugs do you take? Do they have any side effects?
Do they affect your quality of life?
15. Do
you think that your self-confidence and personality have been
affected by this condition?
16.
Have you met any people that reacted negatively to you because
they know about your problem?
17. Do
you feel uncomfortable talking about this? Do you try to hide
it?
18. Do
you think that the community and generally the people that are
closest to you; can help you override this problem
psychologically and see things from a positive angle?

The epileptic mind

3.1 SUMMARY OF THE
INTERVIEW WITH
DR. P.
Dr.
P. is a Neurologist and works at the Cyprus Institute of
Neurology and Genetics. He has the most of epilepsy cases in the
institute. In his own words he explained to us that Epilepsy is
a neurological condition that is characterized by recurrent and
unprovoked seizures. Dr P. said that about 50% of the forms of
epilepsy are inherited. The others are so called are acquired
from trauma, infections and anything else that disturbs the
integrity of the nervous system.
Dr P. said that
there are two main categories and they have several
subdivisions.
Epilepsy comes
from the ancient ages, as Dr P. confirmed and he said that the
oldest description of epilepsy is in Babylonia tabloid, is in
the British museum. It was called a sacred disease in ancient
Greece.
The
percentage of epileptic people in Cyprus is the same as world
wide, it affects 1% of the population. So are six thousand to
seven thousand epileptics in Cyprus.
The
age ranges that are affected by epilepsy are mainly the young
people, children and adolescence, even though epilepsy can occur
in any age.
Epilepsy is still stigmatised in Cyprus as well as in many other
parts of the world, Dr P. said. In families with a history, it’s
more readily accepted. People react badly; sometimes they deny
their condition, that’s why sometimes they have problems,
initially when they begin treatment. Also we can see the denial
from the parent’s side, as they don’t want their child to take
drugs.
He said that
most of the epileptic patients (approximately 70%) respond
readily to their medication and have no further seizures. If
they fall in to the other 30%, they so called resistant
epilepsies, where treatment does not help them, obviously their
whole life is affected, they can not work, they can not have a
social life, they have restricted activities but obviously
interferes with their quality of life.
The
causes of epilepsy are mainly genetic, many genes have been
identified as the causes of epilepsy, and they are the so called
acquired. Trauma is another cause, especially in Cyprus, because
of the very bad driving of the Cypriots. Thus there is a huge
amount of post-traumatic occurrences.
The patients
don’t experience problems with their work if their seizures are
controlled. Dr. P. said that if they have side effects, from
their medications, or their seizures aren’t controlled,
sometimes they are stigmatised, they loose their opportunity to
rise in their work, to get promoted etc. In their social life
they can’t find wife or husband.
He also said
that epilepsy, would effect the way people deal with this family
members especially if they have a paroxysm disorder, like
epilepsy paroxysm.
The
treatment for epilepsy is basically several classes of
anti-epileptic medications, different ones work better for
different forms of epilepsy. There is also a special diet,
called the ketogenic diet. It works better with children with
catastrophic types of epilepsies; these are very severe forms of
epilepsy that do not respond to any other treatment. There are
also some devices, implants that can be used, something called
the vagonerve stimulator. This is a device, which stimulates the
vagal nerve, like a pacemaker, it sends inhibitory impulses up
higher in the brain and controls seizures to some extent as a
last resource there is surgery for certain forms of epilepsy.
Dr P. said that
if the epileptics are children they need the support of their
parents to take their medication and be protected from
potentially harmful activities, like climbing up trees, they
might have a seizure and they might hurt themselves. Adults, and
children need the psychological support of a family, their
acceptance, not rejection, so they can deal with their illness
more effectively. Sometimes this becomes difficult, sometimes
the patients need to see professionals, psychiatrists, for
family as well as individual therapy.
He
also talked about the care unit for epilepsy in Cyprus, which is
one neuro-surgical intensive care unit in the Nicosia General
Hospital that admits people with so called status epilepticals,
which is a form of a seizure, which is prolonged, lasts more
than 30 minutes, or repeated seizures without the person
regaining conciseness in between. He also said that there are
plans to set up here an epilepsy monitoring unit, using video
EEG technology to record seizures as well as the clinical
manifestations, for pre-surgical evaluations.
Dr
P. pointed out the lack of understanding and discrimination, and
said that is important for people with epilepsy to form
organizations and support groups so as to gain some form of
influence, to demand their own rights. Our society could be
better informed about epilepsy he said. A lot of people don’t
know what epilepsy is, or they confuse it with satanic position,
witchcraft. Other people confuse it with psychiatric diseases
even though there are psychiatric manifestations in epilepsy is
an organic disease of the brain.
The other problem that arises from epilepsy is a loss of income
because the patient may not be able to work. He or she may not
be able to take care of his or her children effectively, so
income is usually affected unless the epilepsy is well
controlled. But there are also children, sisters of a patient;
brothers may not be able to find spouses because of the stigma
association.
The treatment
that Dr P. takes for each patient is individual and he said that
it depends on the kind of epilepsy, their age, and their
situation. Some people need drugs, some people need a special
diet, some people need modifications in their lifestyles, and
some people at the same time need to see a psychologist. The
main treatment though, is using anti-epileptic medications.

Epilepsy Surgery (Tlazolteotl)

3.2 SUMMARY OF THE INTERVIEW WITH
DR. K.
Dr. K. is also a neurologist at the Cyprus Institute of
Neurology and Genetics and he gave a more scientific approach on
epilepsy and he said that it encompasses a number of syndromes.
It may occur because of a disorder, due to the spontaneous
discharge of a group of neurons in the brain, which give rise to
a variety of clinical manifestations according to which
populations of neurons are involved, e.g. if the neurons in the
temporal lobe are involved the patient may experience a variety
of autonomic symptoms, olfactory hallucinations, visual
hallucinations with virtual alterations at the level of
consciousness. Alternatively if the discharging neurons are in
the diencephalons, generalized seizures occur with those at the
level of consciousness and tonic clonic convulsions. Dr K. said
that, epilepsy could be inherited.
His answer for
the question on the ancient origin of epilepsy said that it was
recorded in ancient Greece and one of the treatments was to let
the patient live alone to live the spirits get out.
Dr. K. seemed that epilepsy could be found at all ages. There is
epilepsy in childhood and at the old age, the aetiology of
course is different at different ages.
He said that
the patients initially accept epilepsy with denial and also
worry about different things like if they are still going to be
able to drive, if it is inherited etc.
Epilepsy
affects a person’s day to day life in proportion to the
patient’s attitude. A percentage feel fear of rejection from the
others and a percentage live an active and normal life. And of
course it depends on how severe the epilepsy is.
Dr K. said that
the possible causes of epilepsy are genetically acquired,
congenital malformation of the brain, cortical displasias. In
genetic different types, like genetic myoclonic epilepsy
acquired, the reason may be from trauma, infection,
encepalopathy, meningitis, tumours, cerebrovascular disease etc.
The patients do experience problems with their jobs because they
feel fear of having a seizure at work, of the side effects of
medication on their performance, and also psychological problems
affecting their outlook on their job.
He also said
that this condition affects the relationships of the people
surrounding the patient. People may not accept that those people
are cable of doing their job properly.
Dr
K. said that psychological support has to be given to these
patients. They have to be informed about epilepsy. Then you
follow a drug therapy, according to the syndrome. Each drug is
suitable for a particular syndrome.
The
psychological support provided by the patient’s family and
relatives is extremely important. They have to accept the
patient for what he or she is. Support him practical as well as
psychological support; treat them as equals.
He
said that Cypriot society needs an epilepsy service on call with
necessary facilities. There are no suitable units in Cyprus.
There is a great improvement from the society’s view for this
condition, but there is still discrimination against those
people. He thinks that society is not well enough informed about
it.
A
lot, of problems will be faced, by the epileptic patients,
like: Financial implications, psychological problems,
stigmatisation of the family by the society, interfere with
social needs of the family.
Dr. K. said
that in order to give the right treatment to the patient, we
must first make sure that the diagnosis is correct, identify
which syndrome corresponds to the case, give psychological
support and finally drug therapy.

Epilepsy motifs in
sculptures
“Your mind is your force”

3.3
SUMMARY OF THE INTERVIEW WITH
DR. Z.
Dr. Z. is a psychologist at the Cyprus Institute of Genetics.
She says that epilepsy is a disease of the central nervous
system, of which the aetiology is organic. A high percentage of
the disease is inherited and there are a lot of types of
epilepsy. It can be caused by an accident, from a tumour,
stroke, anything that can cause damage to the central nervous
system, or an anatomic anomaly from birth.
She
also explained us the origin of the word epilepsy and she said
that is an ancient Greek word. “Epi” and “lambanon”, which means
that something is received by the brain, that something is
happening in our head, and we can’t control it. Something is
occupying our brain. It was considered to be a secret disease;
they said that it was related with the full moon. It was
considered as a secret because the patient looses his control
and then totally regains it.
Dr
Z. said that only in the institute of Neurology and Genetics
there are approximately one hundred to one hundred and fifty
patients but she didn’t know now many exist outside the
Institute. There are more cases during childhood, adolescence,
of which the cause is usually genetic, and for older ages
usually the aetiology is a tumour, or post – traumatic
epilepsies.
People, she said usually don’t accept epilepsy easily. This may
be because it is a condition that needs continuous monitoring. A
large percentage of epilepsy, during childhood is not just
epilepsy, but a combination of syndromes and genetic aetiologies.
So this influences the mentality and personality of the
patients. There is something that is called the epileptic
personality, which is not an easy personality. There are some
types of personalities that are easier to handle. They can reach
a level or education in some types of epilepsies; the post –
traumatic epilepsies, in combination with other kinds of
problems. So we have an impact on their quality of life.
Dr Z. said that the causes of epilepsy during childhood are
mostly genetic, during older ages: the structure of the brain,
post – traumatic causes, tumours.
She also said
that most of the patients have problems at work. This is because
of the personality change of the patient, the disease. Most of
them are not allowed to drive, drink alcohol, have many side
effects from the drugs they take; they are depressed and they
are falling asleep. So the impact on their life is obvious.
The treatments available are: the anti-epileptic drug therapy,
and the surgical treatment, which cannot be applied to all
patients. The surgical procedure is not done in Cyprus.
She
said that the family has to become informed about epilepsy. They
have to ask for the support of a specialist, a psychologist,
they can take family therapy. So they can be helped to deal
psychologically with the problem.
Dr Z. said that in the Cyprus Institute of Neurology and
Genetics they have most of the epileptic patients in Cyprus.
Unfortunately they don’t have any specialised centre for the
epileptic patients. There is no surgical team that can operate
on an epileptic patient; we are at the beginning. We just have
simple encephalograms.
She also thinks
that in Cyprus, in a large extent there is no discrimination.
She said that the idea of the “secret” disease has been
override.
If society is
not informed, which Dr Z. thinks it is, the people surrounding
the patient are capable of informing the society about the
disease, and telling the people that is not something deadly or
supernatural.
She said that
the most common problems, which these patients face, are: the
loss of their job and financial problems. Also, the creation of
a myth around the disease; especially among the children, if one
of their parents has it. They will be afraid of having seizures
themselves.
Dr Z. said that
in order to treat the syndrome you have to find the aetiology.
According to the syndrome there are a lot of types of drugs. If
the patient does not respond to the drug she would change the
drug. If nothing happens with the drug therapy she can proceed
to the surgical solution of the problem.

Alt-Otting, Bavaria

3.4 SUMMARY OF THE INTERVIEW WITH
Miss (X)
When I was told that my first interview, given to me by the
Institute of Neurology and Genetics, was with a girl just
fourteen years old, I was afraid. I said to myself, how am I
going to deal with this patient, she is so young for an
interview.
When I met her I completely changed my mind. She seemed very
understanding and mature. When I asked her about her condition,
she tried to explain to me what it is but she couldn’t say it
with scientific words. She explained it to me with her own
words, what happens when a seizure comes. She said that she
feels nothing, she just feels her hand moving and that her
mother says that she has her mouth open during a seizure. This,
she said, lasts for one and a half minutes.
She
said that the first seizure was six years ago. She remembered
that because she had to spend her Easter vacation in the
hospital. She said that she took it patiently. Her family
started to react over protectively, even thought she didn’t say
that clearly.
She
said that she used to have seizures very often, but now the
seizures became very rare, probably due to the drug treatment.
She must be a very mature girl because she said that her
behaviour didn’t change, from the time she knew that she had
epilepsy. Her friends know about her condition because of a
seizure she had while she was on a school bus. Her friends
treated her in the best way. Her performance at school she said,
stayed unaffected. Her schoolteachers, while they know about the
condition don’t show anything more than for the other students.
. This is probably because they try to avoid any kind of
discrimination.
All
her friends remained the same and she has no problem in making
new friends. Because of her age, she doesn’t recognise the
discrimination that society might have on patients with
epilepsy, or she might just ignore the fact that this
discrimination exists. On the question for the driving licence,
she answered that epilepsy people don’t have any problems in
driving, even thought she doesn’t drive.
She
was informed about the treatment of epilepsy, about drug therapy
as well as for surgery and also informed that there are no units
in Cyprus that can perform such an operation. She also knew the
dangers on having this operation, for example the danger of
staying handicapped.
There are no side effects with her medication, and there is no
impact on her quality of life. Her personality and self –
confidence remained the same. She thinks that the society can
help her to override psychologically her problem by having a
positive altitude to her and convince her that this is just
nothing.

3.5 SUMMARY OF THE INTERVIEW WITH
Mr (Y)
Mr
Y is a thirty -three year old, friendly man. He was a driver for
a company in Cyprus. He used to carry cargos from one town to
the other. When I met him he seemed very friendly with me and he
tried to answer to all my questions.
He
said that he has this condition because of a car accident. When
he has a seizure his mind stops, he is on another plane. The
drug treatment helps him with his problem and now he knows when
he is going to have a seizure and he sits and waits for it to
happen. He had his first seizure approximately ten years ago.
His first thoughts were about his family and his wife.
He had a lot of help from his wife. He didn’t believe that the
problem was such a serious one. His wife helped him
psychologically and she convinced him to visit the doctor, she
became over – protective and had a positive influence on him. He
has a seizure two or three time per month. Many of his friends
know about the problem and they are taking a good care of him
any time he has a seizure.
Epilepsy made him change the way he thinks and sees the world.
He feels useless in the society, especially after he gave up his
job. He feels a shame of himself. Here is may be the place where
a good psychological support would be very helpful.
He said that before he
gave up his job his superiors and colleagues didn’t know about
the condition. But unfortunately because of the kind of job he
used to do, he couldn’t keep the condition a secret. There was a
high risk of hitting other people from an unexpected seizure
while driving the long car. So he gave up his job.
He
felt a strong friendship surrounding him, he found out his real
friends. He noticed a kind of discrimination. He lives in a
small village where everybody knows each other. So the problem
cannot remain a secret.
He
agrees with the law, which prohibits driving for epileptic
people, that’s why he gave up his job. You can’t endanger the
people around.
He
seemed hopeless when I asked him about the treatment and he said
that there is no real treatment. He said that the treatment just
reduces the number of seizures. He said that the condition
cannot completely, be treated. Even thought he said that his
self –confidence has not been affected, I found that he was
afraid to trust him self. He also said that people don’t trust
him and they are afraid to ask something from him.
He
said that hiding his condition from the people depends from the
people he is talking to.
Society plays a great role on psychologically helping people
with epilepsy. If someone doesn’t trust you because you have
this condition, he forces you to be paranoid about the
condition. This, according to him, increases the number of
seizures dramatically. He gave me an example of his brother. His
brother entrusted him with a dog farm and that reduced the
number of seizures. He feels more comfortable with himself.
“Epilepsy Surgery” The
stone cutter

3.6 SUMMARY OF THE INTERVIEW WITH
Mr (Z)
Mr
Z was a very nice thirty -one years old man. He works for a
Brewery company in Cyprus and he was very happy talking about
his condition. He got this condition as a post -traumatic damage
in the brain, after a car accident, ten years ago. He had his
first seizure six years after the car accident. He was well
enough informed about the types of epilepsy, and he said that he
did a kind of research through books trying to find information
about his condition.
He
had very good support from his family. His only worry when he
found out about his condition was his children. But his
children, especially his first son seemed very mature and he is
helping him any time he has a seizure. The family became
over-protective and that had a very positive effect on his
problem.
He
takes medication, and that he said reduces the number of
seizures dramatically. His behaviour and personality remain the
same. At work his colleagues and superiors are taking a good
care of him. They are helping him psychologically and making him
forget the condition and think something else.
The
problem after a seizure is that his muscles are tensed and he
has to stay home for a week. But, because of the good relations
with his boss, he faces no problem.
The
problem with his sleep is that sometimes he has insomnia, “it’s
like something that warns you for a seizure” he says.
He
has no problem in making new friends and he has very good
relations with his old friends. He doesn’t care what the people
say about him, he said that he could handle his problem by
himself and his friends. Here he seemed very self –confident, he
knows the problem and he also knows the ways to overcome it.
He
agrees with the law, which takes away the driving licence for
the epileptics, because of the danger of hitting someone by
mistake.
He knows that
he will have the post- traumatic epilepsy for a lifetime, but he
doesn’t seem to care. “The only thing you have to do, is to take
your medicine,” he says.
He
hasn’t met any people that acted negatively to him and he
doesn’t mind about talking about his problem. He thinks that the
community can help epileptics by giving them a better job. Also,
by organising a special program, for epileptics, inside
hospitals. He also agrees that epileptic people need financial
support.

Patron saints of epilepsy
(Saint Cyriakus)

4.0
Conclusion
Having said all that and having interviewed each patient and
each medical professional separately, we can extract a lot of
useful information about the neurological condition known as
epilepsy. The doctors helped me to understand all the
difficulties the patients face practically and psychologically.
Even thought there were some differences in between the three
interviews with the doctors, we conclude that is not just the
problem that matters. Society plays an important role for the
treatment of such patients. We also found out that the society
lacks a lot of facilities that are important for the treatment
of those people. Each doctor basically follows a treatment
according to the case and the patient.
From each
patient we extracted a lot of information and we have seen the
way with which each patient has fought and still fighting
epilepsy. The patients are trying to forget that they have any
kind of problem and with the help of their own family and friend
are able to do it. Two of the patients complained about the
support given to them by the society, which is not enough for
their problem. They are waiting for a more modern society, which
has sent the man on the moon. From the interviews we see that
the discrimination still exists but in a very small amount. Even
though the discrimination is rare, the family of the patient
cannot avoid labelling and stigmatisation, which still exist and
make the life of those people difficult.
So
we hope that science will find new methods of treatment for this
condition and that society will help these people with their
psychological and any other problems they might face.

“What doubtless
remained longer than leprosy, and would persist when the
lazar houses had been empty for years, were the values and
images attached to the figure of the leper as well as the
meaning of his exclusion, the social importance of that
insistent and fearful figure which was not driven off
without first being inscribed within a sacred circle.”
Michel Foucault, Madness
and Civilization: a history of Insanity in the age of Reason
(11)

Saint Ubald of Gubbio
German
Epilepsy Museum

6.0
?
References
?
1.
Lozano AM,
Hodaie M, Dostrovsky J, et al. Chronic thalamic anterior nucleus
stimulation for intractable epilepsy. Program and Abstracts of
the 54th Annual Meeting of American Epilepsy Society; December
1-6, 2000; Los Angeles, California.
Abstract
100092.
2.
Van Laere KJ, Boon P, Vonck K, et al.
Perfusion SPECT activation studies in acute and chronic
vagus nerve stimulation. Program and Abstracts of the 54th
Annual Meeting of American Epilepsy Society; December 1-6, 2000;
Los Angeles, California. Abstract 100419.
3.
Boon PAJM, D'Have M, Van Walleghem P, et al. Direct
medical costs of refractory epilepsy incurred by three different
treatment modalities, a prospective assessment. Program and
Abstracts of the 54th Annual Meeting of American Epilepsy
Society; December 1-6, 2000; Los Angeles, California. Abstract
100114.
4.
Labar DR, Nikolov BG, Hosain SA, et al. Mood and
anxiety changes in epilepsy patients treated with vagus nerve
stimulation. Program and Abstracts of the 54th Annual Meeting of
American Epilepsy Society; December 1-6, 2000; Los Angeles,
California. Abstract 100249.
5.
Hosain SA, Harden CL, Nikolov BG, et al. Vagus nerve
stimulation in children with lennox-gastaut syndrome: a one-year
outcome. Program and Abstracts of the 54th Annual Meeting of
American Epilepsy Society; December 1-6, 2000; Los Angeles,
California. Abstract 100704.
6.
Epilepsy Syndromes A Guide (http://home.earthlink.net/~mchee1/episynd.html)
7.
Epilepsy (http://www.medscape.com/LCM/InfMind/2001/03.01/)
8.
Trimble MR, Dodson WE, eds. Epilepsy and quality of
life. New York, New York: Raven Press Ltd., 1994.
9.
Hauser WA, Hesdorffer DC. Epilepsy: frequency, causes
and consequences. New York, New York: Demos Publications,
1990:1--52.
10.
Begley CE, Famulari M, Annegers JF, et al. The cost
of epilepsy in the United States: an estimate from
population-based clinical and survey data. Epilepsia
2000;41:342--51.
11.
Devinsky O, Penry JK. Quality of life in epilepsy:
the clinician's view. Epilepsia 1993;34:S4--S7.
12.
Collings JA. Psychosocial well-being and epilepsy: an
empirical study. Epilepsia 1990;31:418--26.
13.
Baker GA, Camfield C, Camfield P, et al. Commission
on outcome measurement in epilepsy, 1994--1997: final report.
Epilepsia 1998;39:213--31.
14.
Buck D, Jacoby A, Baker GA, Graham JS, Chadwick DW.
Patienl.s' experiences of and satisfaction with care for their
epilepsy. Epilepsia 1996;37:841-849.
15.
Achenbach TM. Manual for the Child Behavior
Checklisl/4 Ifi. Burlington, VT: University of Vermont
Department of Psychiatry, 1991.
16.
Achtcrbcrg A, Nclcn W. The five-day epilepsy
programme in Breda. Epilvpsichiilletin 1990:6.
17.
Aldenkanip AP, Bijvoet MR. lleiscn TWM, SuurmeyerTPBM.
The influence olepilepsy in parents on psychosoeial
I'unclioning ol their children. Advtiiicvs in Kf)ilrfiti)liy\:
Viil 17. New York: Raven Press, 19X9.
18.
Arntson P, Droge I), Norton R. Murray \:. The
perceived p.sycliosociiil consequences of having epilepsy. In:
Whitman S, Hermann HP, eds. I'sychH/HilliiiliiKV in K/iili'/isy
Nixw/ Dimrnxiiinx. New York: Oxford University Press.
19.
Epilepsy and Art: Votive tables, paintings,
sculptures. German Epilepsy Museum
http://www.epilepsiemuseum.de/.
|