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The Role of Law and Litigation
HIV Infection and AIDS in the Public Health and
Health Care Systems
[JAMA HIV/AIDS Information Center]
Vol. 279, pp. 1108-1113, Apr. 8, 1998
Lawrence O. Gostin, JD; David W. Webber, JD
The AIDS Litigation Project has reviewed nearly 600
reported cases involving individuals with human immunodeficiency virus
(HIV) infection and acquired immunodeficiency syndrome (AIDS) in the
federal and state courts in the United States between 1991 and 1997.
Cases were identified through a federal and 50-state computer and
library search. An important subset of litigation relates to HIV/AIDS in
the public health and health care systems, since the law affects health
care institutions and professionals, patients, and public health policy
in America. This subset of HIV/AIDS litigation includes testing and
reporting; privacy, the duty to warn, and the right to know; physician
standards of care in prevention and treatment; and discrimination and
access to health care. In broad terms, the review demonstrates a
reliance on voluntary testing and protection of patient privacy through
HIV-specific statutes and the common law. Negligence with potential
civil and criminal liability has been alleged in cases of erroneous or
missed diagnosis of HIV infection. In the first AIDS case to be
considered by the Supreme Court, the Court will decide whether patients
with asymptomatic HIV infection are protected under the Americans With
Disabilities Act. Considerable progress has been made, both socially and
legally, during the first 2 decades of the epidemic, but much still
needs to be accomplished to protect privacy, prevent discrimination, and
promote tolerance.
JAMA. 1998;279:1108-1113
Editor's Note: For a comprehensive report on the
AIDS Litigation Project, see 2 articles from the AIDS & Public Policy
Journal that are available in full text on this site with the kind
permission of that journal's publisher. The articles analyze cases
involving the duties of government and individuals in preventing HIV
transmission (Part I), as well as those involving the rights of
individuals (Part II).
[*] Identifying Cases of HIV Infection
[*] Privacy, Duty to Warn, and the Right to Know
[*] Prevention and Treatment
[*] Discrimination
[*] Conclusion
[*] References
THE EPIDEMIC of human immunodeficiency virus (HIV)
infection and the acquired immunodeficiency syndrome (AIDS) has had
powerful personal, social, and economic effects throughout America—in
employment, housing, insurance, education, prisons, and many other
aspects of life.[1] Yet, perhaps the most profound effects of the
epidemic have been in the public health and health care systems.[2]
Public health and medicine have responsibilities to monitor, prevent,
and treat HIV infection. At the same time, the nation has struggled with
the task of reconciling patients' rights to privacy and
nondiscrimination with collective rights to public health protection.
Given the high degree of ongoing social conflict
caused by the epidemic, it is not surprising that, unlike past
infectious disease outbreaks, attempts to resolve contentious issues
consistently involve the courts and legislatures at all levels.
Furthermore, because of the high level of patient activism and advocacy,
as well as immediate public access to new developments in scientific and
medical information, including that available via the Internet, law and
policymaking have not been the exclusive preserve of medical experts or
other professional specialists. The resulting democratization of
policymaking processes has heightened the impact that legislatures and
courts have had on the public health and health care systems.
Deeply divisive questions have emerged relating to
informed consent for HIV testing, named HIV reporting, confidentiality
vs the duty to warn, and an HIV-infected physician's right to practice.
These and many other questions have come to be decided by legislatures
and courts. The results are by no means uniform or consistent. Court
decisions in similar cases sometimes conflict, and legislatures in
different jurisdictions at times take markedly different approaches.
Nevertheless, legislation and litigation provide a window through which
the HIV epidemic's troubling questions, arising in relation to the
delivery of health care services and the formulation of complex public
health policy, can be examined.
This article is part of the AIDS Litigation
Project,[3,4] which has reviewed nearly 600 cases reported in the
federal and state courts in the United States between 1991 and 1997. The
methods involved a federal and 50-state computer and library search of
all reported cases involving HIV infection or AIDS. This article
discusses an important subset of litigation relating to HIV/AIDS in the
public health and health care systems. (The complete AIDS Litigation
Project report can be found in the Library section of the HIV/AIDS
Information Center at http://www.ama-assn.org.)
Table of Contents
[_______________]
IDENTIFYING CASES OF HIV INFECTION: TESTING AND
REPORTING
Issues of law and public policy take on new urgency
as the HIV/AIDS epidemic experiences a paradigm shift. Combination
antiviral therapies and clinical prophylaxes provide for the first time
an opportunity for a longer, higher quality of life for persons living
with HIV.[5] Combination therapies have markedly reduced the incidence
of AIDS,[6] have lowered rates of perinatal transmission,[7,8] and
potentially may diminish infectiousness by decreasing viral load. With
these new treatment opportunities, it becomes critically important to
identify persons at the earliest stages of HIV infection and to ensure
full and fair access to the health care system.
Testing, since the approval of an HIV antibody test
in early 1985,[9] has been considered essential for HIV prevention. With
more recent advances in antiviral and prophylactic treatments, testing
has also become important as an entree into the health care system.
Public health and medical authorities recommend that all persons at risk
should know their serologic status, and many want to see the "routinization"
of HIV testing. A broad range of testing services are desirable, such as
testing by primary care clinicians and hospitals, public clinics,
"alternative" (anonymous) test sites, and home testing. The
technological development of "rapid" tests and analyses of saliva and
urine will make testing easier for the public.
Despite the manifest clinical and public health
benefits, testing may result in loss of privacy, increased social
stigma, and discrimination. As a result, many state legislatures have
enacted special requirements for HIV testing. State legislation requires
informed consent, often in writing, as well as pretest and posttest
counseling. While counseling and consent are thought to be important to
enhance patient autonomy, ironically, they do make it more burdensome
for health care professionals to "routinize" HIV testing and bring it
into the mainstream of medicine.
Voluntary testing is almost universally
recommended, and most states have abided by an ethic of voluntarism.
Compulsory, nonconsensual testing has been undertaken only in limited
circumstances and principally for nonmedical purposes. Thus, mandatory
tests are imposed, for example, on US military[10] and foreign service
personnel,[11] immigrants,[12] and certain sex offenders.[13,14] In the
health care setting, however, compulsory testing violates statutory and
common law requirements for informed consent and may violate
nondiscrimination statutes[15] or constitutional prohibitions against
unreasonable searches and seizures.[16] Although a Pennsylvania court
held that HIV testing without patient consent or knowledge did not
violate state common law doctrines of informed consent or invasion of
privacy,[17] that ruling was subsequently overturned by statute.[18]
Some states permit nonconsensual HIV testing of
patients in limited circumstances. An Alabama statute, for example,
allows testing without consent if (1) the patient is at "high risk" of
infection; (2) knowledge of the patient's serologic status is necessary
for medical care; or (3) knowledge of HIV status is needed for the
protection of health care personnel. A federal district court found the
high-risk classification to be unconstitutional because a patient could
be arbitrarily classified, but upheld the other 2 classifications.[19]
Many states allow compulsory testing to determine the HIV status of a
patient in the event of an injury to a health care worker, emergency
response employee, or corrections officer that poses a risk of HIV
transmission.
Scientific evidence that anti-HIV therapy could
significantly reduce perinatal transmission, together with new treatment
opportunities for newborns, has led legislatures to consider mandatory
testing of pregnant women and newborn infants. Under federal law, states
must at a minimum follow Centers for Disease Control and Prevention (CDC)
guidelines recommending counseling and voluntary testing for all
pregnant women. If federally set targets for reduction of perinatal HIV
transmission are not met, mandatory measures ensue.[20] At the state
level, several legislatures have enacted laws that mandate counseling
and make voluntary testing available. These federal and state statutes
may set a standard of care in tort, so that failure to counsel and offer
testing to pregnant women may result in physician liability for wrongful
life or wrongful birth in the event that the infant is born with HIV
infection.[21] New York has enacted a law requiring mandatory testing of
newborns, even though a positive antibody test reveals the serologic
status of the mother. New York's law also requires disclosure to the
mother and protects confidentiality.[22] That law is currently under
court challenge on constitutional grounds.[23]
Since the earliest moments of the epidemic, all
states have required named reporting of CDC-defined AIDS. By contrast,
28 states require HIV reporting,[24] and 3 additional states conduct HIV
surveillance for pediatric cases only.[25] All HIV reporting states
except Maryland and Texas are name based.[26] The CDC recently
recommended that all states move to a system of HIV surveillance.[6] The
CDC also recommends that states (unless otherwise required by state law)
provide alternative test sites where names of persons with HIV infection
are not reportable. Ten states proscribe nonreportable, anonymous
testing.[27] North Carolina's closure of publicly funded anonymous HIV
test sites was upheld as a valid exercise of the state's public health
powers.[28]
The predominantly voluntary approach to HIV testing
and the absence of a national HIV surveillance system has resulted in
concerns that HIV/AIDS has acquired a special or "exceptional"
status.[29] In New York State, prominent medical organizations sued to
compel the health commissioner to include HIV in the official list of
sexually transmitted diseases (STDs). By failing to classify HIV as an
STD, the commissioner declined to trigger his powers for compulsory
testing, reporting, and contact tracing. New York's highest court held
that the classification of diseases was within the commissioner's
discretion and affirmed the reasonableness of his belief that the
exercise of mandatory powers would not serve an important public health
purpose.[30]
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PRIVACY, DUTY TO WARN, AND THE RIGHT TO KNOW
Privacy of HIV data has been thought to be
necessary for both patient autonomy and public health.[31] Privacy
safeguards against social stigma and discrimination and allows each
person to make decisions for herself concerning disclosure. Privacy also
supports trusting clinical relationships and participation in public
health services such as testing, counseling, and partner notification.
Most states have HIV-specific statutes requiring confidentiality of HIV
data.[32] Litigation claiming wrongful disclosure of HIV-related
information has been commenced against numerous individual and
institutional providers during the course of the epidemic, including
hospitals,[33] physicians,[34] and health departments.[35]
Guided by the mandates of the provider-patient
privilege and state HIV confidentiality laws, health care professionals
are generally prohibited from revealing a patient's HIV-related
information.[36] In fact, some state privacy statutes specifically
protect HIV information within the health care or social service
setting.[37] Intentional disclosure is only 1 way to breach
confidentiality. A health care facility's negligent failure to protect a
medical record from disclosure may also violate privacy.[38] However,
not all disclosures result in liability. If the health care provider can
present a compelling reason for disclosure, a court may allow it. The
courts balance the need for the disclosure against the harm done to both
the individual's privacy and the public interest and often have little
difficulty finding against the individual's privacy right. Using such a
test, a Pennsylvania court authorized a hospital to disclose a
physician's HIV status to 280 patients who had received invasive
procedures.[39] In another case, a court held that a public health
agency's disclosure of confidential HIV information to aid in a criminal
prosecution was permissible; the criminal activity was deemed a waiver
of confidentiality.[40] In contrast, another court prohibited law
enforcement access to public health records.[41]
A major tension exists between confidentiality and
the "right to know." Health care workers and others who perceive
themselves to be at risk for HIV infection in the workplace claim the
right to know the HIV status of patients or others. Generally, because
infection control precautions in the health care setting are both the
standard of practice and highly effective, right-to-know claims are
difficult to maintain. For example, a surgeon's lawsuit alleging
emotional distress caused by learning, after the fact, that his surgical
patient was HIV positive was rejected.[42] Similarly, if morticians and
emergency response employees use universal infection control
precautions, the risk of HIV transmission is negligible. Nevertheless,
federal law authorizes, under certain circumstances, disclosure of HIV
information to morticians and emergency response workers upon their
request.[43] But whether right-to-know claims will be successful in
generating damage awards seems questionable. In a West Virginia case, a
mortician filed a tort action against a hospital for failing to inform
him that a corpse he had handled was contaminated with HIV. The court
found no liability in the absence of actual exposure.[44]
Fear of HIV Exposure in the Health Care Setting
Many cases have been filed by patients claiming
that individual or institutional health care providers are liable for
exposing them to the risk of HIV transmission without their knowledge.
Patients argue that health care professionals negligently caused them
emotional distress by failing to warn or failing to prevent some contact
that is perceived to pose a risk of transmission. These plaintiffs seek
compensation for their mental distress and anguish. Recognizing the
litigious nature of American society, many courts limit fear of HIV
claims by requiring proof that the plaintiff's mental distress is a
result of circumstances posing an actual risk of HIV transmission.
Plaintiffs who fear an objectively nonexistent or unprovable risk
generally will not be compensated.[45,46] Furthermore, many courts limit
compensation to distress occurring during the "window of anxiety," the
period between learning of possible exposure and obtaining a reliable
HIV-negative test result.[47] In 1 case, a surgical patient provided her
own blood for transfusion, but the surgeon transfused another donor's
blood. This negligence caused emotional distress that, in light of
plaintiff's precautions, was in the court's view both reasonable and
foreseeable.[48]
HIV-Infected Health Care Professional's Duty to
Disclose
Several courts have held that health care
professionals have a duty to disclose their HIV status to patients or
health authorities, assuming that their professional activities pose a
risk of transmission to patients. The Maryland Court of Appeals ruled
that a surgeon has a duty to inform his patients of his infection; even
if the patient has not actually been exposed and tests HIV negative, the
contact with the surgeon may subsequently give rise to a claim for the
infliction of mental distress due to fear of transmission.[49] Courts
justify orders to disclose based on a duty to protect patients and on
the doctrine of informed consent.[39] Requiring disclosure to patients,
of course, can severely jeopardize a health care professional's career.
To avoid this result, some states allow the professional to continue
practicing, with appropriate restrictions and supervision, but without
disclosing his or her HIV status.
The Duty to Warn Third Parties at Risk
Many state laws permit, but do not require,
disclosure by physicians to third parties known to be at significant
future risk of HIV transmission from patients known to be infected.[50]
Thus, if a physician reasonably believes that a patient will share drug
injection equipment or have unprotected sex without informing a partner
of the risk, the physician has discretion to inform the partner. Under
some disclosure laws, the physician is required to first counsel the
patient to refrain from the risk behavior, and, in providing the
third-party warning, the physician is prohibited from disclosing the
patient's identity. In the absence of state laws permitting such
disclosure, physicians may be held liable for breach of confidentiality
for disclosing patient information to sex partners.[51]
The "duty to warn" may extend to nonpatient third
parties in other contexts, based on the provider's primary duty to the
patient. Thus, health care professionals have a duty to inform patients
that they have been transfused with HIV-contaminated blood, and this
duty may extend to third parties. A physician in 1 case failed to inform
a teenager or her parents that she had been transfused with
HIV-contaminated blood. When the young woman's sexual partner tested
positive for HIV, the court upheld his claim against the physician based
on the physician's failure to inform the patient.[52] Similarly, courts
have held that a health care professional's duty to inform a patient of
his or her HIV infection may extend to those the patient foreseeably
puts at risk such as a spouse[53] or family member caregiver.[54] On the
other hand, courts have ruled that disclosure is wrongful in cases in
which the third party, such as a family member, is not at actual risk of
infection, or the physician has no knowledge that the patient has failed
to disclose to the partner.[55]
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PREVENTION AND TREATMENT: PHYSICIAN STANDARDS OF
CARE
Negligent Diagnosis of HIV/AIDS
Patients who have been erroneously informed that
they are HIV-infected, when in fact they are not, have filed suit
against their health care providers for negligent infliction of
emotional distress. Some of these plaintiffs have argued that an
HIV-positive diagnosis is a "death sentence" that inflicts extreme
psychological harm. To limit recovery to only those cases involving a
significant claim for compensation, some courts have refused to award
damages unless the mental distress arose from or led to physical injury.
For example, courts have held that increased blood pressure is not an
adequate injury, but that adverse effects of AIDS treatments or a
patient's attempt at suicide would suffice to justify liability.[56]
Other courts have not imposed a physical injury requirement.[57]
Providers may also be liable for negligently
failing to diagnose HIV infection. In 1 case, a jury awarded more than
$1 million in a case in which an earlier diagnosis would have delayed by
1 year the onset of symptoms, disability, and death.[58] A physician may
also be liable for unnecessary delay in notifying a patient of exposure
to HIV[59] and may be liable to the patient's sexual partner who is
subsequently infected.[52] However, providers have not been held liable
for failure to diagnose and effectively treat HIV unless the plaintiff
has shown a causal connection between their failure and the injury
suffered.[60] In the early years of the epidemic, failure to diagnose
HIV infection did not expose the provider to significant liability,
since treatment options and likelihood of success in treatment were
limited. But as treatments for HIV illness develop to higher levels of
efficacy, failure to render a prompt diagnosis or failure to initiate
prompt and appropriate treatment may expose providers to increasing
liability.
Distribution of Drug Injection Equipment
Public health[61] and medical[62] authorities
recommend that physicians counsel drug users to use a new syringe and
needle for every injection. Syringe exchanges have been established at
the state and local levels to prevent transmission of HIV and other
blood-borne pathogens.[63] Nevertheless, a web of state statutes create
criminal offenses for the sale, distribution, or possession of syringes
and needles.[64,65] These laws pose the threat of prosecution to public
health officials and community activists who distribute sterile needles
and syringes, and, in some cases, prosecutions have resulted. The
Washington Supreme Court, however, upheld syringe exchange as a valid
public health measure. The court reasoned that the health department had
acted in pursuance of an AIDS statute that granted the department the
general power to implement prevention strategies.[66] Federal law
prohibits use of federal funds for syringe exchange until the secretary
of health and human services certifies that exchanges are effective in
preventing HIV infection and do not encourage drug use.[67]
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DISCRIMINATION AND ACCESS TO CARE
The HIV epidemic has been characterized by a high
level of social opprobrium against those infected or suspected of being
infected. As a result, individuals with HIV infection routinely
encounter discrimination in many aspects of their lives. Discrimination
in the health care setting, however, is especially pernicious, depriving
patients of necessary services and undermining their trust in the
system's commitment to provide them with the care they need. If
individuals fear discrimination in health care, they may forgo testing
or fail to discuss their health and risk behaviors. Furthermore, because
health care professionals are viewed by the general public as being well
informed, their actions set a poor example for others attempting to
respond to the epidemic in a nondiscriminatory fashion.
Institutional health care providers and other
employers have a duty to provide a reasonably safe workplace. The use of
barrier techniques on a universal basis has been the officially
sanctioned approach to workplace safety. As a result, discrimination
against patients is rarely, if ever, justified by a provider's fear of
transmission. The Occupational Safety and Health Administration's (OSHA's)
blood-borne pathogen safety standard[68] has been challenged as overly
broad,[69] but remains the primary safety standard. Although employer
noncompliance with infection control standards may give rise to a
justifiable refusal to work, the underlying fear must have an objective
basis.[70] Employee claims of occupational transmission (or fear of
occupational transmission) are generally covered by worker compensation
statutes,[71] which provide exclusive remedies for work-related claims
against employers.[72]
Definition of "Disability" Under the ADA: The
Supreme Court's First AIDS Case
An array of laws at the federal, state, and local
levels prohibit discrimination on the basis of a person's disability or
health status.[1] The primary federal nondiscrimination statute is the
Americans With Disabilities Act (ADA) of 1990,[73,74] although the laws
of many states and localities also specifically prohibit discrimination
against individuals living with HIV/AIDS.
The ADA provides that no individual "shall be
discriminated against on the basis of disability in the full and equal
enjoyment of the goods, services, facilities, privileges, advantages, or
accommodations of any place of public accommodation."[75] The ADA's
definition of "public accommodation" specifically includes hospitals and
professional offices of health care providers.[76] Similarly, New York's
highest court ruled that the offices of private dentists are considered
places of public accommodation under New York law.[77]
A critically important issue under the ADA is
whether persons with asymptomatic HIV infection have a "disability" and
thus are protected under the ADA.[78] Disability is defined as a
physical or mental impairment that substantially limits 1 or more of the
major life activities of the individual, a record of such impairment, or
being regarded as having such an impairment.[79] In the past, many
courts have ruled or assumed as undisputed that HIV infection, as the
underlying cause of a life-threatening illness, is a disability.
However, several recent court decisions have held that HIV does not
automatically qualify as a disability, and in each case there must be an
individualized determination as to whether the infection actually
limits, in a substantial way, a major life activity. Given the advent of
new combination therapies that significantly delay the onset of
disabling symptoms, this judicial view could markedly undermine legal
protection against discrimination for persons with asymptomatic or
mildly symptomatic HIV infection. The ADA's legislative history,
however, indicates that Congress intended to include HIV infection
within the definition of disability, and the Equal Employment
Opportunity Commission's regulations embody that view.[80] In its first
AIDS case ever, the Supreme Court will decide whether and to what extent
persons with HIV infection are protected under the ADA.
In Abbott v Bragdon,[81] a dentist refused to fill
a dental cavity of an HIV-infected patient. The patient then brought
suit alleging that the refusal violated the ADA. The dentist conceded
that his professional office was covered by the ADA, but argued that
providing services to the infected patient, because of the risk of HIV
transmission, would pose a direct threat to his health. Additionally, he
argued that the plaintiff, who did not have symptoms of HIV illness, was
not an individual with a disability under the ADA. The lower courts
rejected the dentist's defenses, concluding that the dentist was unable
to show that in 1994, when the case arose, there was evidence that
treating an infected patient posed a significant risk. The plaintiff's
infection, which she testified resulted in her decision against becoming
pregnant, was viewed as substantially limiting the major life activity
of reproduction. The Supreme Court has agreed to consider 3 questions
presented by the case: (1) whether reproduction is a major life
activity; (2) whether asymptomatic HIV infection is a per se disability
under the ADA; and (3) whether the courts should defer to a health care
provider's reasonable professional judgment.
The ADA's coverage also extends to individuals
merely regarded as having a disability. Thus, it is unlawful to
discriminate against an individual based on the misperception that the
person is infected with HIV under the ADA as well as under the laws of
many states.[82] Persons discriminated against because of their
association with a person with HIV infection are also protected,[83] as
are persons retaliated against because of their opposition to
discrimination.[84]
The Health Care Professional's Duty to Treat
Courts have consistently held that health care
professionals have a legal duty to treat patients living with
HIV/AIDS.[85] Health care professionals must, of course, exercise
appropriate clinical judgment. If a professional lacks the skill
appropriate to render competent care, she may legally refuse to treat
the person and may lawfully refer him elsewhere.[86] A clinician cannot,
however, simply reject or refer an HIV-infected patient solely because
of his or her HIV status.
The courts have had to decide the difficult
question whether and to what degree a health care professional can treat
HIV-infected persons differently from other patients. Although CDC and
OSHA standards require use of "universal" precautions applicable to all
patients without regard to infection status, imposition of special
precautions for HIV-infected patients has been upheld.[87] One court,
finding that special precautions may be necessary for certain
procedures, ruled that a dentist may lawfully refuse to treat a patient
who refuses to reveal HIV-related information.[88] But another court
ruled that the use of special precautions, which resulted in delay of
services, beyond those recommended by the CDC constituted unlawful
discrimination.[89]
Nondiscrimination in Health Insurance
Access to health care is often contingent on the
ability to pay or the availability of insurance coverage. Federal and
state law provides little or no protection from adverse coverage
decisions provided the insurance company uses sound actuarial data.
However, an employer's decision to place severe limits on coverage for
HIV/AIDS, but not on comparable diseases, may be unlawful under the
ADA.[90,91] A central question in determining the extent of health
insurance coverage is whether certain services are "medically
necessary." In an important case, the Eleventh Circuit Court of Appeals
held that skilled nursing care was "medically necessary" and should be
reimbursed under an employer's self-funded health benefits plan.[92]
HIV-Infected Health Care Professionals
Federal law[93] requires states to comply with CDC
guidance[94] that recommends an individualized determination of whether
HIV-infected physicians engaging in "exposure-prone" procedures can
safely practice. At present the CDC and the American Medical Association
are reevaluating their policies in light of epidemiologic evidence
showing that the risk to patients, even from invasive procedures, is
negligible. The judiciary has had to decide whether HIV-infected health
care professionals pose a significant risk to their patients, and thus
are not qualified to continue to practice. Several courts have upheld
decisions to prohibit HIV-infected health care professionals who perform
invasive procedures.[95,96] These courts have reasoned that the severity
of harm if HIV infection were transmitted justifies practice
restrictions. However, the Ninth Circuit Court of Appeals held that a
physician's practice could not be restricted if he did not primarily
perform invasive procedures. The physician, a general internist, was
employed by the Federal Bureau of Investigation (FBI). The agency
refused to refer patients to the physician after suspecting that he was
HIV positive. The court ruled that the FBI had failed to make adequate
inquiries about the physician's infection control procedures: "The
record shows that Dr. Doe and the hospital were entirely forthcoming
about these procedures, but that their explanations fell on deaf
ears."[97]
Prisoner Health Care
Access to adequate health care for prison inmates
living with HIV/AIDS has been a long-term problem.[98] Gross
inadequacies in state prison health care systems may rise to a
constitutional violation.[99] In New York, inmates living with HIV/AIDS
challenged the state's delivery of medical, mental health, educational,
and prevention services. The court ordered the state to release records
enumerating the inmates, both living and deceased, who had been
diagnosed as having AIDS or AIDS-related illnesses, in order to aid in
the court's determination as to whether the prison authorities
deliberately neglected the inmates' health care needs.[100] Inadequate
medical care and lack of HIV education services resulted in a
court-imposed remedial plan in another case.[101] But when a showing of
deliberate indifference is lacking, federal constitutional claims
against prison officials will fail.[102]
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CONCLUSION
Considerable progress has been made—socially and
legally—during the first 2 decades of the HIV/AIDS epidemic. Reductions
in social stigma and new statutes to protect privacy and proscribe
discrimination have emerged. The serious consequences of the epidemic,
however, are not over. While instances of gross abuse are less frequent,
intolerance and animus stubbornly persist. Even legal advances have been
eroded with some courts denying antidiscrimination protection for
persons with asymptomatic HIV infection, and upholding discrimination
against HIV-infected health care professionals despite the extremely low
risks.
Systematic efforts to confront the HIV/AIDS
epidemic are needed: (1) expanded and nondiscriminatory access to health
care; (2) expansion of counseling, testing, and other prevention
services; (3) educational campaigns to promote tolerance and reduce
social stigma; and (4) better laws to protect privacy and prohibit
discrimination. The health care and public health systems need these and
other kinds of new strategies to reduce the deep personal and social
burdens of HIV disease in the United States.
From the Georgetown/Johns Hopkins Program on Law
and Public Health, Washington, DC, and Baltimore, Md (Mr Gostin). Mr
Webber is in private practice in Philadelphia, Pa.
Reprints: Lawrence O. Gostin, JD, Georgetown
University Law Center, 600 New Jersey Ave NW, Washington, DC 20001
(e-mail: gostin@law.georgetown.edu).
Health Law and Ethics section editors: Lawrence O.
Gostin, JD, the Georgetown/Johns Hopkins University Program on Law and
Public Health, Washington, DC, and Baltimore, Md; Helene M. Cole, MD,
Contributing Editor, JAMA.
Table of Contents
[_______________]
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15. T.E.P. v Leavitt, 840 F Supp 110 (D Utah 1993).
16. Glover v Eastern Neb Community Office of
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17. Doe v Dyer-Goode, 566 A2d 889 (Pa Super Ct
1989).
18. Pa Stat Ann tit 35, §7607.
19. Hill v Evans, No. 91-A-626-N, 1993 WL 595676
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20. 42 USC §300ff-34.
21. Anastosopoulos v Perakis, 644 A2d 480 (Me
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22. New York Department of Health,
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24. Alabama, Arizona, Arkansas, Colorado, Florida,
Idaho, Indiana, Louisiana, Michigan, Minnesota, Mississippi, Missouri,
Nebraska, Nevada, New Jersey, New Mexico, North Carolina, North Dakota,
Ohio, Oklahoma, South Carolina, South Dakota, Tennessee, Utah, Virginia,
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25. Connecticut, Texas, and Oregon.
26. Gostin LO, Ward JW, Baker, AC. National HIV
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27. Alabama, Idaho, Michigan, Nevada, North
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33. Doe v Methodist Hosp, 639 NE2d 683 (Ind Ct App
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34. Doe v Marselle, 675 A2d 835 (Conn 1996), rev'g
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35. Estate of Benson v Minnesota Bd of Medical
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36. Doe v Roe, 588 NYS2d 236 (Sup Ct Onondaga
County 1992), rev'd in part, 599 NYS2d 350 (App Div 1993), subsequent
opinion, 620 NYS2d 666 (App Div 1994).
37. NY Pub Health Law §2782.
38. Estate of Behringer v Medical Ctr, 592 A2d 1251
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39. In re Milton S. Hershey Medical Ctr, 634 A2d
159 (Pa 1993), aff'g 595 A2d 1290 (Pa Super Ct 1991).
40. State v Stark, 832 P2d 109 (Wash Ct App 1992).
41. State v J. E., 606 A2d 1160 (NJ Super Ct Law
Div 1992).
42. Ordway v County of Suffolk, 583 NYS2d 1014 (Sup
Ct Suffolk County 1992).
43. 42 USC §300ff-76(4).
44. Funeral Servs by Gregory, Inc v Bluefield
Community Hosp, 413 SE2d 79 (WVa 1991), overruled in part by Courtney v
Courtney, 437 SE2d 436 (WVa 1993).
45. Kaufman v Physical Measurements, Inc, 615 NYS2d
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46. Barrett v Danbury Hosp, 654 A2d 748 (Conn
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47. Madrid v Lincoln County Medical Ctr, 923 P2d
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48. Hoffman v Brandywine Hosp, 661 A2d 397 (Pa
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49. Faya v Almaraz, 620 A2d 327 (Md 1993).
50. Gostin LO, Hodge J. Piercing the veil of
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51. N. O. L. v District of Columbia, 674 A2d 498
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52. Reisner v Regents of Univ of Cal, 37 Cal Rptr
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53. Garcia v Santa Rosa Health Care Corp, No.
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54. J. B. v Sacred Heart Hosp, 635 So2d 945 (Fla
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55. Diaz Reyes v US, 770 F Supp 58 (DPR 1991),
aff'd without opinion, 971 F2d 744 (1st Cir), cert denied, 504 US 957
(1992).
56. R. J. v Humana of Fla, Inc, 652 So2d 360 (Fla
1995).
57. Bramer v Dotson, 437 SE2d 773 (WVa 1993).
58. Doe v McNulty, 630 So2d 825 (La Ct App 1993),
cert denied, 631 So2d 1167 (La 1994).
59. Mixon v Cason, 622 So2d 825 (Ala 1993).
60. Baker v English, 894 P2d 505 (Ore Ct App 1995),
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64. Gostin LO, Lazzarini Z, Jones TS, et al.
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65. Gostin LO, Lazzarini Z. Prevention of HIV/AIDS
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66. Spokane County Health Dist v Brockett, 839 P2d
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68. Occupational Safety and Health Administration.
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69. American Dental Ass'n v Martin, 984 F2d 823
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70. Armstrong v Flowers Hosp, 33 F3d 1308 (11th Cir
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71. Miller P, Tereskerz D, Jagger J. Occupationally
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72. Elliott v Dugger, 579 So2d 827 (Fla Dist Ct App
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73. 42 USC §§12101 et seq.
74. Gostin L, Beyer H, eds. The Americans With
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75. 42 USC §12182(a).
76. 42 USC §12181(7).
77. Cahill v Rosa, 674 NE2d 274 (NY 1996), rev'g
632 NYS2d 614 (App Div 1995).
78. Parmet WE, Jackson DH. No longer disabled: the
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79. 42 USC §12102(2).
80. 29 CFR §1630, appendix at 339 (1996).
81. Abbott v Bragdon, 107 F3d 934 (1st Cir 1997),
aff'g 912 F Supp 580 (D Me 1995), cert granted, 118 SCt 554 (1997).
82. Sanchez v Lagoudakis, 486 NW2d 657 (Mich 1992),
subsequent opinion, 552 NW2d 472 (Mich Ct App 1996).
83. Finley v Giacobbe, 827 F Supp 215 (SD NY 1993).
84. Sherer v Foodmaker, Inc, 921 F Supp 651 (ED Mo
1996).
85. Howe v Hull, 873 F Supp 72 (ND Ohio 1994).
86. Schulman v State Div of Human Rights, 641 NYS2d
134 (App Div 1996), rev'd, 677 NE2d 284 (NY 1997), on remand, 658 NYS2d
70 (App Div 1997).
87. North Shore Univ Hosp v Rosa, 657 NE2d 483 (NY
1995), aff'g 600 NYS2d 90 (App Div 1993).
88. Doe v Kahala Dental Group, 808 P2d 1276 (Haw),
reconsideration denied, 841 P2d 1074 (Haw 1991).
89. Sharrow v Bailey, 910 F Supp 187 (MD Pa 1995).
90. EEOC Interim Guidance on Application of the ADA
to Health Insurance. Washington, DC: Equal Employment Opportunities
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91. Carparts Distrib Ctr, Inc v Automotive
Wholesalers Ass'n, 37 F3d 12 (1st Cir 1994), rev'g 826 F Supp 583 (D NH
1993).
92. Florence Nightingale Nursing Serv v Blue Cross
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Cir), cert denied, 115 S Ct 2002 (1995).
93. Pub L No. 102-141, Title VI, §633, 1991 USCCAN
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94. Centers for Disease Control and Prevention.
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procedures. MMWR Morb Mortal Wkly Rep. 1991;40(RR-8):1-9.
95. Bradley v Univ of Tex M. D. Anderson Cancer Ctr,
3 F3d 922 (5th Cir 1993) (per curiam), cert denied, 114 SCt 1071 (1994).
96. Mauro v Borgess Medical Ctr, 886 F Supp 1349
(WD Mich 1995).
97. Doe by Lavery v Attorney Gen'l, 44 F3d 715 (9th
Cir 1995), superseded without opinion, 62 F3d 1424 (9th Cir), vacated
and remanded sub nom Reno v Doe by Lavery, 116 SCt 2543 (1996).
98. Burris S. Prisons, law and public health: the
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99. Hetzel v Swartz, 917 F Supp 344 (MD Pa 1996).
100. Inmates of NY State With HIV v Cuomo, No.
90-CV-252, 1991 US Dist LEXIS 1488 (ND NY Feb 7, 1991).
101. Madrid v Gomez, 889 F Supp 1146 (ND Cal 1995).
102. State ex rel Peeples v Anderson, 653 NE2d 371
(Ohio 1995).
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