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It's better to light a candle than to curse the darkness

Miscellaneous Articles on the Stigma of Infectious Diseases

     

Main topics can be found within the left column; sub-topics and/or research reports can be found near the bottom of this page.  Thank you
     

"Among the findings and results of the study are the following:

Knowledge about STDs, HIV/AIDS and family planning is directly affected by exposure to adequate information. Misinformation, erroneous concepts and negative perspectives are important in the development of fears, rumors and taboos regarding STDs and HIV/AIDS. The influence of previous experience, gender and religion was also identified.

Stigmas and negative attitudes towards people with HIV/AIDS inhibit awareness of one's own risk.

The project resulted in the implementation of strategies for the strengthening and development of interventions in the area of IECC. "

—Qualitative Study on the Knowledge, Attitudes and Practices Regarding STDs and HIV/AIDS with Focus Groups from the STDs and HIV/AIDS Prevention Pilot Project

Level of Hepatitis C knowledge

"Only 16% of the surgical residents knew that there was a vaccine for hepatitis A. Though 84% knew that there was no vaccine for hepatitis C, the majority (56%) were unaware that Hepatitis C Virus was a sexually transmitted disease and 82% did not know about the possibility of it being transmitted perinatally. Of all the subjects, 93% knew that Hepatitis C Virus could be transmitted through blood transfusion and 88% knew about its transmission through a needle-stick injury. As well, 65% did not know that Hepatitis C Virus is initially asymptomatic. Knowledge about the complications of Hepatitis C Virus was adequate. Most of the residents were unaware of the physical properties of the virus, i.e., what destroys it, thus they incorrectly estimated the seroconversion rates with exposure to patients. This finding correlates with another study.23 Overall, there were significant gaps in the knowledge of the hepatitis C virus transmission.

Attitudes

With regards to attitudes towards Hepatitis C Virus, 42% of the respondents said they would tell their patients about their own Hepatitis C Virus seropositivity and 64% of residents did not believe in interferon therapy. Of all the respondents, 40% were in a habit of reading medical literature at least once a week."

—Hepatitis C: Knowledge, Attitudes and Practices among Orthopedic trainee surgeons in Pakistan

ADDITIONAL ARTICLES:

 

Document Name & Link to Document Description

File Size /pdf

A REVIEW OF SOCIAL SCIENCE RESEARCH ON HIV/AIDS

Around 22 million people have died from AIDS since the beginning of the epidemic and there are approximately 36 million people infected with HIV in the world today, of which about 70 percent live in Sub-Saharan Africa. Rates of newly acquired HIV infection are highest in the 15-19 age group, and the majority of infections in this group are girls. Concerted national and international efforts are therefore needed to prevent the spread of HIV, mitigate the effects of the epidemic and to break the silence that still continues to surround HIV in many countries.

 

A review of the Knowledge, attitudes and behaviors of university students concerning HIV/AIDS Research related to HIV/AIDS among university students has focused primarily on the assessment of knowledge, attitudes and behaviours and to a lesser extent, on the effectiveness of educational interventions. Ensuring the greatest success involves a multifaceted and coordinated effort which brings together faculty, administration, students, health education professionals and the external community of students 125 kb pdf

A Second Decade of Stigma: Public Reactions to AIDS in the United States, 1990-91

Throughout the 1980s, a second epidemic shadowed AIDS in the United States. Many people infected with HIV were socially isolated, fired from their jobs, driven from their homes, and even physically attacked. 'AIDS-related stigma'.   also posed threats to the physical and psychological well-being of those simply perceived to be at risk. Members of the gay and lesbian community, for example, appeared increasingly to be targets of hate crimes, many of which included references by the perpetrators to AIDS.2 In addition, AIDS-related stigma affected public support for government policies, and governmental support for AIDS-education programs.3 And it affected the willingness of individuals and entire communities at risk to acknowledge AIDS as a problem and to initiate prevention programs

 

A Woman Stoned

A woman was stoned to death because her neighbors thought they would get AIDS from her!  Though we have heard of such cases before, we never thought it would happen so near.

 

AIDS: A Jewish Perspective At the outset, one possible misconception must be dispelled. The argument is sometimes made that since AIDS is spread by conduct that both Judaism and Christianity regard as immoral, society should not be overly concerned. Let the sinners suffer the consequences of their sin. This is an utterly fallacious argument  
AIDS, Stigma and the Media There is an emerging global consensus among governments, international organizations and the private sector to focus more attention and resources on HIV/AIDS…Perhaps the most underutilized force for scaling up is the media, especially when it comes to reaching young people.  Media can also play a critical role in breaking the silence about HIV in countries with emerging epidemics and reluctant leaders. 414 kb pdf

AIDS-Related Stigma and Social Interaction: Puerto Ricans Living With HIV/AIDS

 

People living with HIV/AIDS are stigmatized. Although personal and social consequences of this stigmatization have been documented, research regarding its impact on social interactions is scarce. Latinos, and Puerto Ricans in particular, have voiced concern regarding AIDS stigma. The authors investigated the key role of social interaction in the process of stigmatization through in-depth, semistructured interviews in a sample of 30 Puerto Ricans living with HIV/AIDS. Participants reported instances in which AIDS stigma negatively influenced social interactions with family, friends, sexual partners, coworkers, and health professionals. Some of the consequences they described were loss of social support, persecution, isolation, job loss, and problems accessing health services. Findings support the need for interventions to address AIDS stigma and its consequences. Pdf 121 kb

An overview of HIV/AIDS-related stigma and discrimination

All over the world, the epidemics of HIV and AIDS are having a profound impact, bringing out the best and the worst in people. They trigger the best when individuals group together in solidarity to combat government, community and individual denial, and to offer support and care to people living with HIV and AIDS. They bring out the worst when individuals are stigmatized and ostracized by their loved ones, their family and their communities, and discriminated against individually as well as institutionally.

 

Antecedents of Attitudes Toward the Poor

This study assessed attitudes toward the poor using just-world beliefs, external/structural attributions for poverty, and internal/individualistic attributions for wealth as predictors. Just-world beliefs are the extent to which people believe the world is a just or unjust place, and that people get what they deserve. High levels of just-world beliefs frequently contribute to schemas that are associated with victim blaming (e.g., the rape victim must have done something to provoke it). Attributions are indicators of the characteristics (or traits, motives, etc.) that people ascribe to themselves or others.  
Atlantic City-needle exchange program a proposal to implement the state's first needle-exchange program,  

Attacks on Science" The Risks to Evidence-Based Policy

As government agencies, academic centers, and researchers affiliated with them provide an increasing share of the science base for policy decisions, they are also subject to efforts to politicize or silence objective scientific research

115 kb pdf

Bias, Discrimination, and Obesity This article reviews information on discriminatory attitudes and behaviors against obese individuals, integrates this to show whether systematic discrimination occurs and why, and discusses needed work in the field. Clear and consistent stigmatization, and in some cases discrimination, can be documented in three important areas of living: employment, education, and health care. Among the findings are that 28% of teachers in one study said that becoming obese is the worst thing that can happen to a person; 24% of nurses said that they are "repulsed" by obese persons; and, controlling for income and grades, parents provide less college support for their overweight than for their thin children.  

Caregivers

HIV disease presents profound challenges to primary caregivers including adjusting to the care recipient's disease progression, having increasing responsibilities for decision making as the disease progresses, responding to unexpected improvement, having to deal with a virtually uncontrollable disease, and managing role conflict and fatigue. Caregivers who are themselves infected with HIV face additional challenges.

 

Case Study Executive Summary

 

DCSA established its workplace and community HIV/AIDS project in 2001 to address the increasing financial burden associated with HIV/AIDS. DCSA also decided to provide prevention, care, support and treatment services to employees, their dependants and the community as part of DCSA.s obligation to these stakeholders based on the principles of corporate social responsibility (CSR).  

Changing the Stigma of and Levels of Awareness for Hepatitis and HIV/AIDS

"They deserve to die!" "How did he get it?" "Tom has AIDS, he must be gay." The terms HIV/AIDS and Hepatitis are now almost interchangeable with lifestyles being gay or being a user of IV drugs; if you are positive for AIDS, you must be gay; if you are positive for Hepatitis, you must have used IV drugs.

 

China Discrimination Fuels HIV/AIDS Crisis

Widespread discrimination against people with HIV/AIDS is fueling the spread of the epidemic in China, Human Rights Watch charged in a new report released today

 

Christianity and Islam in Africa's Political Experience: Piety, Passion and Power Relations between Islam and Christianity can be conflictual as they currently seem to be in parts of the Nile Valley, or competitive as they seem to be in East Africa, or ecumenical as they have often been in countries like Tanzania. Christianity and Islam are in conflictual relations when hostilities are aroused, and the two great religions re-enact in Africa a shadow of the Crusades. Christianity and Islam are in competition when they are rivals in the free market of values and ideals, scrambling for converts without edging towards hostility.  
CHRONIC/SERIOUS MENTAL ILLNESS . . . individuals who, through no fault of their own or their families, suffer from one of several diseases affecting the brain, the most complex of human organs. The causes remain unknown, but are probably multiple. There is no cure, but we do have effective treatment. In addition to having a brain disease, people with serious mental illness are (by definition) significantly functionally impaired by the illness for an indefinite period of time (diagnosis, disability, duration). At least 1% of the population are seriously mentally ill. The problems of victims and their families are compounded by stigma, one of the cruelest and most prevalent forms of bigotry that exists.  

Completing the Triangle: Immoral Places, Immoral Behavior

 

It is impossible to pin down chronologically the origins of the three-way alcoholism–syphilis–tuberculosis connection. In a paper presented at a 1891 tuberculosis conference that may represent the first explicit reference, Dr. E. Tison included a case study of an alcoholic and syphilitic patient who died of tuberculosis. Tison concluded that the progress of the tuberculosis was more rapid than normal in this case (not sclérosant) and that “pulmonary [tuberculosis] followed organic weakening by syphilis and alcoholism.” Somewhat indirect references to this triangular connection can be found in writings on tuberculosis around the turn of the century as well. For example, Romme maintained in 1901 that the “seed” of tuberculosis found “a particularly propitious soil” in unsanitary lodgings, whose inhabitants were “ravaged by syphilis and alcohol.” In most cases, references to the three-way connection were oblique, or remained at the level of allusion.  
Considerations on the Stigma of Mental Illness
Stigma, prejudice, and discrimination are closely related and 
tightly interwoven social constructs. These constructs affect 
many, based on age, religion, ethnic origin, or socio- economic status.
 

COPING MECHANISMS OF THE STIGMATIZED: METHODS OF PROTECTING SELF-WORTH

the paper focuses on different theoretical models that stigmatized individuals may use in order to cope with prejudice and compensate for their stigma. Empirical evidence and current research trends are reviewed with a view towards presenting not only what research has been conducted and how it is being interpreted, but also what questions are being raised and remain unanswered by current social science research.

 

Coping Mechanisms of the Stigmatized: Methods of Protecting Self-Worth A stigmatized person possesses and exhibits an attribute that conveys a devalued personal and social identity within a particular social context.  Stigmatized individuals are commonly the targets of stereotyping, prejudice and discrimination, face social rejection, and perceive considerable threat from the nonstigmatized or outgroup. 83 kb pdf
Coping with Stigma How should we deal with stigma and its impacts?  This question would probably seem absurd to an ancient Greek, about to brand someone with a visible mark to signify that this person was immoral or dangerous and thus undesirable, someone to be denigrated and avoided.  Stigmatization in ancient Greece was a form of risk management.  Even today, stigmatization can be a positive force for risk reduction pdf

Couples

A couple is composed of two persons in a committed sexual or romantic relationship, usually over a significant period of time. Couples may be opposite-sex or same-sex, married or unmarried, monogamous or non-monogamous, and cohabitating or living apart and may or may not have children.

 

     

COUPLES' PERCEPTIONS OF WIVES' CFS SYMPTOMS, SYMPTOM CHANGE, AND IMPACT ON THE MARITAL RELATIONSHIP

The purpose of this descriptive correlational study was to describe the differences in couples' perceptions of wives' Chronic Fatigue Syndrome (CFS) symptoms and to describe the relationship between changing symptoms and the marital relationship.

 

Cure versus care

The term 'Quality of Life' is often heard... and said at the Hospice to remind us of our main aim and purpose. As most of our patients have been diagnosed with a terminal disease, further treatment is often inappropriate and cure is not always an option.

 

Definition of the freak Sadly, those of our species who are found to be outside the borders of normality in appearance and action have been often stared at, studied, exploited, exhibited, and most often, feared. In the middle ages, they were seen as "prodigies", signs of God's displeasure and/or dominion over the earth, and were thus exploited by religious zealots.  

DENIAL

Because HIV/AIDS carries so much stigma (qv) there are many pressures for denying a seropositive status or not seeking a test. Individuals may have a psychological aversion to hearing news of what is considered to be virtually a death sentence and there are more practical disadvantages such as the high chances of being sacked or difficulties in getting insurance as well as marital problems when serostatus is known. At governmental level there may be denial of statistics because it is assumed that this will frighten away investment or tourists.

 

Denial, Stigma Delaying Alzheimer's Diagnoses Most diagnoses of Alzheimer's disease are delayed until more than two years after the first symptoms appeared, according to a survey released Tuesday. Ignorance, denial and stigma are conspiring to delay the diagnosis, the researchers reported, which can have a serious medical impact, since medications to slow the illness' progress are most effective in its early stages.  

Differences in Knowledge of Hepatitis B Among Vietnamese, African- American, Hispanic, and White Adolescents in Worcester, Massachusetts

Adolescent knowledge about risk of infection was low in this study. Attention should be directed at providinghealth education on hepatitis B to adolescents, particularly to Vietnamese. Health care providers, community healtheducators, and others engaged in the effort to control and eradicate hepatitis B should be sensitive to the unique educationaland cultural needs of high-risk southeast Asian adolescent populations.

 

DISABILITY AWARENESS AND CHANGING ATTITUDES

Public attitudes toward disability are often the greatest barrier for people with disabilities

 

Disclosure

Hepatitis C (Hepatitis C Virus) is a highly stigmatized disease. Revealing a diagnosis of Hepatitis C Virus can cause anxiety on a number of levels. The ramifications of this disclosure can impact medical, marital, family, insurance and other area of one’s life.

 

Doctors' and Nurses' Knowledge and Attitudes

From a social perspective, AIDS (acquired immunodeficiency syndrome) revives longstanding issues about the relationships between health care professionals and their patients. A particular issue is the willingness of physicians and nurses to treat people with a contagious, fatal, and stigmatized disease.

 

Don't let myths and misconceptions rule your life! A diagnosis of epilepsy raises so many questions: Will I ever be able to drive a car? What about a good job? Can I have children? All these uncertainties may cause you more worry than the seizures themselves. Like cancer and leprosy, epilepsy has been feared and stigmatized throughout history, and you have probably heard many stories about it. The fear and shame associated with epilepsy have faded over the past century, but they have not vanished. They will not disappear entirely until many more people are informed about the facts concerning epilepsy.  

Effect of HIV Reporting by Name on Use of HIV Testing in Publicly Funded Counseling and Testing Programs

No significant declines in the total number of HIV tests provided at counseling and testing sites in the months immediately after implementation of HIV reporting occurred in any state, other than those expected from trends present before HIV reporting.

 

Endnotes

Listing of references

51 kb pdf

Epidemic Cholera in the New World

In Latin America, as in other parts of the world, epidemiological field investigations of cholera have defined the local routes of transmission, identified unsuspected and correctable control points, and quantified the effects of emergency measure

74 kb pdf

Epidemic Ravages Caregivers; Thousands die from diseases contracted through needle sticks

"When a crane falls or a mine caves in, the government rushes to do something about it. But when health care workers are dying, it's invisible."

 

EPILEPSY The word epilepsy is derived from the Greek verb  (epilamvanein) ("to be seized," "to be taken hold of" or "to be attacked"). In ancient Greece, as now, people spoke of "having seized" and of having had an "attack." This terminology derived from the even older notion that all diseases represented attacks by the gods or evil spirits, usually as punishment. Even in comparison with all the advances made during the last century—more than at any other time in history—consider how enor­mous and fundamental was that first step attributed to Hippocrates in about 400 bc: that epilepsy is a disease of the brain that must be treated by diet and drugs, not reli­gious incantations.  

Epilepsy-associated stigma in sub-Saharan Africa: The social landscape of a disease

Many studies in developed regions of the world have con.rmed that stigma contributes substantially to the psychological and social burden of epilepsy. Relatively few studies of epilepsy-associated stigma have been conducted in Africa, where much of the world’s burden of epilepsy exists. In sub-Saharan Africa (SSA), particularly in rural regions, close family ties, communal living situations, and traditional belief systems undoubtedly in.uence the expression of stigmatization. A review of the epidemiologic, anthropologic, and sociologic studies of epilepsy in SSA provides signi.cant insights into how people with epilepsy (PWE) are perceived by their communities and families and how these perceptions translate into limited social and economic opportunities and possibly worsen the physical vulnerability of PWE in this region. The medical community is not exempt from the social process of stigmatization, and poor public health infrastructure and medical services undoubtedly contribute to the cycle of epilepsy-associated stigma through wide treatment gaps, poor seizure control, and high rates of seizure-related injury. In this review, we extrapolate data from existing studies of epilepsy in SSA coupled with our own experience providing epilepsy care in the region to give an overview of the social landscape of this common, devastating condition. Pdf 135 kb
Eugenics—Sacred and Profane Dor Yeshorim only gives approval or disapproval of a match; it does not inform individuals of their carrier status. “By keeping the results a secret, the testing program avoids the cost of counseling every carrier of a genetic disease,” Rabbi Ekstein argued in a recent article. “You don’t need the counseling, we do the job for you.” Of course, if a couple is told that they are not a suitable match, they know by implication that each of them is a carrier of one of the recessive genes. Thus while keeping the specifics of people’s genetic status private, Dor Yeshorim’s approach does not eliminate the potential for stigma. “When a match is proposed and nothing happens,” says Rabbi Tendler, “people naturally ask, why didn’t this happen? They submitted to Dor Yeshorim and then decided not to get married. This reveals immediately to their entire Jewish community that there are two people who are blemished.”  

EVOLVED DISEASE-AVOIDANCE PROCESSES AND CONTEMPORARY ANTI-SOCIAL BEHAVIOR: PREJUDICIAL ATTITUDES AND AVOIDANCE OF PEOPLE WITH PHYSICAL DISABILITIES

Drawing on evolutionary psychological logic, we describe a model that links evolved mechanisms of disease-avoidance to contemporary prejudices against individuals with physical disabilities. Because contagious diseases were often accompanied by anomalous physical features, humans plausibly evolved psychological mechanisms that respond heuristically to the perception of these features, triggering specific emotions (disgust, anxiety), cognitions (negative attitudes), and behaviors (avoidance). This disease-avoidance system is over-inclusive: Anomalous features that are not due to disease (e.g., limb amputation due to accident) may also activate it, contributing to prejudicial attitudes and behaviors directed toward people with disabilities. This model implies novel hypotheses about contemporary variables that may amplify or reduce disability-based prejudice. We discuss past research within this context. We also present new evidence linking chronic and temporary concerns about disease to implicit negative attitudes toward and behavioral avoidance of disabled others. Discussion focuses on the conceptual and practical implications of this evolutionary approach. Pdf 130 kb
Experience of stigma among Chinese mental health patients in Hong Kong The stigma attached to a label of ‘mental illness’ can have a lasting impact on the person so labelled. The expectation and actual experience of stigmatisation can result in lowering of self-esteem and quality of life persistent depression impairment in social relationships and early treatment discontinuation Coping with the stigma by avoidance, withdrawal and secrecy is common, but may result in demoralisation, social isolation and lost opportunities for education, employment and housing  
Face Dynamics: From Conceptualization to Measurement Having face means both commanding social influence over others as well as being influenced by others--another aspect of reciprocity.  A person who has face is in a position to exercise considerable influence, even control, over others in direct or indirect ways; at the same time, he/she is under a strong constraint to act in accordance with the requirements for maintaining his/her face.  The more face, the greater the social visibility and public scrutiny over one's actions, and hence the stronger the constraint imposed on one's actions.  Examples are abundant:  candidates seeking high public office in the United States run the risk of having their private life, past and present, exposed to microscopic scrutiny by the public.  

Fact Sheet: UNAIDS Describes HIV/AIDS Discrimination

All over the world, the epidemics of HIV and AIDS are having a profound impact, bringing out the best and the worst in people. They trigger the best when individuals group together in solidarity to combat government, community and individual denial, and to offer support and care to people living with HIV and AIDS. They bring out the worst when individuals are stigmatized and ostracized by their loved ones, their family and their communities, and discriminated against individually as well as institutionally.

 

Factors associated with refusal to treat HIV-infected patients: the results of a national survey of dentists in Canada

One in 6 dentists reported refusal to treat HIV-infected patients, which was associated primarily with respondents' lack of belief in an ethical responsibility to treat patients with HIV and fears related to cross-infection

 

Fear and Stigma: The Epidemic within the SARS Outbreak Because of their evolving nature and inherent scientific uncertainties, outbreaks of emerging infectious diseases can be associated with considerable fear in the general public or in specific communities, especially when illness and deaths are substantial. Mitigating fear and discrimination directed toward persons infected with, and affected by, infectious disease can be important in controlling transmission. Persons who are feared and stigmatized may delay seeking care and remain in the community undetected.  

Fear of dying and HIV infection vs. hepatitis B Infection

Fear of certain death seems to account for the greater concern about exposure to HIV than to Hepatitis B.

 

Gender Symposium: "On The Basis of Sex": Recognizing gender-based bias crimes. Advocating the interchangeability model, Professor McDevitt of Northeastern University has argued that only stranger rape should be included as a gender-based bias crime, excluding date or acquaintance rape and all domestic violence because of the lack of victim interchangeability. ... If that offender would only assault that particular gay man or other gay men he knows and would not go and search out other unknown gay men to "bash," that does not prevent his ultimate violent victimization of the known neighborhood gay man from being characterized as a bias crime. ... Likewise, the preexisting relationship between the victim and perpetrator of a date rape or sexual battery should not preclude characterization of that victimization as a bias crime. ... But the question for bias crime purposes is whether there is also a significant group component. While rape may be sexually motivated in part, it is also motivated in significant part by prejudice or bias against the victim's gender. ... In states that recognize a gender category, courts have just begun to recognize that domestic violence can constitute a type of bias crime under certain circumstances.  
GLOBAL APPEAL TO END STIGMA AND DISCRIMINATION AGAINST PEOPLE AFFECTED BY LEPROSY Leprosy is among the world’s oldest and most dreaded diseases. Without an effective remedy for much of its long history, it often resulted in terrible deformity. It was also thought to be extremely communicable. Patients were abandoned, forced to live in isolation and discriminated against as social outcasts. Pdf 177 kb
Health-Africa-AIDS-stigma: Africa's AIDS pandemic finds a friend in stigma "Religious leaders have contributed to stigma because they regard the victims as sinners and adulterers," Sheikh Al Haj Yussuf, vice chair of Kenya Muslim Supreme Council, said. "It is still a taboo of sexuality. The link is: AIDS equals sex and sin, because people are reluctant and fear to speak about it openly," said a South African priest, Reverend Jape Heath, a coordinator of African Network of Religious Leaders Living with HIV.  

Hepatitis C Tests, Treatment for New Jersey Prison Inmates Could Cost State More Than $8 Million Per Year

A New Jersey program to pay for hepatitis C tests and treatment for prison inmates could cost between $4.5 million and $8 million this year

 

Hepatitis C-change: Executive summary

The evidence to this Enquiry clearly demonstrates that hepatitis C is a highly stigmatized condition and that discrimination against people with hepatitis C is rife. Such discrimination is often driven by irrational fears about hepatitis C infection, due to an inadequate understanding of how hepatitis C is transmitted. However, a perhaps more powerful driving force for discrimination than ignorance about hepatitis C transmission, is that infection is inextricably linked with illicit drug use, a highly stigmatized behavior. Evidence to this Enquiry makes it abundantly clear that discrimination against people with hepatitis C is often motivated by stereotyped responses towards people on the basis of past, current or assumed injecting drug use.

 

HIV And Homeless Shelters: Policy And Practice

The crises of homelessness and HIV are two of our country's greatest challenges. Rather than existing independent of each other, they are inextricably interwoven. It is estimated that between one third and one half of people living with AIDS in the United States are either homeless or at imminent risk of homelessness. This means that a disproportionate number of homeless individuals are infected with HIV. A study tracking the spread of HIV in the late '80's and early '90's in 16 U.S. cities reported a median HIV seroprevalence of 3.4% for homeless adults, compared to less than 1% for the general population.

 

HIV Stigma Scale

This study ask about some of the social and emotional aspect of having HIV-questionnaire

105 kb pdf

     

HIV Testing and Confidentiality

[t]he surveillance of an infectious disease has been defined as the continuous scrutiny of all aspects of its spread. ... The reporting of an infectious disease is often seen as a first step in controlling its further spread. Reporting allows determination of the presence of the disease in the population.

 

HIV-Related Stigma and Discrimination - The Epidemic Continues

This article is one of a series commissioned to mark the tenth anniversary of the Canadian HIV/AIDS Legal Network, discussing past developments and future directions in areas of policy and law related to HIV/AIDS. It looks at HIV-related stigma and discrimination. The article summarizes the present situation as described in reports from numerous countries throughout the world. It reviews the institutional, non-institutional, and structural dimensions of HIV-related discrimination. It also identifies some essential components of anti-discrimination efforts: legal protection; public, workplace, and health-care programs; community mobilization; and strategizing on the determinants of health.

 

HIV-Related Stigma and Knowledge in the United States: Prevalence and Trends, 1991-1999

People with AIDS and the social groups to which they belong have been stigmatized worldwide since the epidemic began. Stigma has interfered with effective societal response to AIDS and has imposed hardships on people living with HIV as well as their loved ones, caregivers, and communities.

1,414 kb pdf

HIV-related stigma in a sample of HIV-affected older female African American caregivers

Nineteen older female (mostly African American) in formal caregivers of HIV-infected individuals participated in qualitative interviews to explore their experiences with HIV-related stigma. Perceived and directly experienced stigma were examined in the context of disclosure of the presence of HIV disease. Overt HIV-related stigma was rarely experienced by these respondents, primarily because they had not widely disclosed the presence of HIV in the family and therefore had not given anyone the opportunity to ostracize or judge them. HIV-related stigma was internalized, so that disclosure decisions were based on their anticipation of censure. There also was evidence of associative stigma and of stigma management. The findings suggest the need for social work practitioners to increase awareness of the needs of stigmatized, isolated HIV-affected caregivers.

 

HIV/AIDS and Municipalities Although AIDS has become very common it is still surrounded by silence. People are ashamed to speak about being infected and many see it as a scandal when it happens in their families. People living with AIDS are exposed to daily prejudice born out of ignorance and fear.  
HIV/AIDS Stigma and Discrimination: A Kerala Experience It goes without saying that HIV/AIDS is as much about social phenomena as it is about biological and medical concerns…But the disease is also associated with stigma, ostracism, repression and discrimination as HIV affected individuals have been rejected by their families, their loved ones and their communities. 43 kb pdf
HIV/AIDS Stigma: The Latest Dirty Secret The rejection of HIV/AIDS stigma is based on the understanding that all acts of social exclusion relating to HIV/AIDS are not only morally wrong but also counterproductive to effective HIV/AIDS prevention and treatment 191 kb pdf

Holocaust as a Paradigm of Empathy

 

Since 1945 we have seen genocide repeated, in Cambodia and Uganda, in Rwanda and Bosnia. Modernity, with its access to science and technology, has perfected the killing of others in a way that makes the carnage exacted by religious wars of the past pale by comparison. In fact, the very question "Why be good?" challenges the assumption of modern Western thought that goodness is innate. If we have to ask the question, then perhaps we are not good; what we are trying desperately to do is to find reasons to keep at bay the chaos unleashed by seeing what we human beings really are. The Shoah is not an historical aberration, but a paradigm of human behaviour  
How Stigma Interferes With Mental Healthcare The advocacy world is not in favor of the term "stigma" because it suggests that the social wrong is in the person. I would not throw away the word "stigma." I would argue with caution that people who are stigmatized have some social cues that signal to the rest of the world. Sometimes they are fairly obvious social cues, such as skin color or other body characteristics. Other people don't have an obvious mark but are labeled once they come out, and they tend to have all the problems with stigma. An example is gay people. We can't tell if someone is gay by looking at them, only if someone points the person out. Religious background, level of education, and history of being in prison are all things you can't tell unless the person comes out.  
Impact of the Worst Incident of Abuse Women were asked how the abuse affected them in the past and in the present. A qualitative overview indicates that abuse generally impacted negatively on the emotional and psychological functioning of survivors. Abuse also had a detrimental impact on women’s relationships and daily functioning. Some physical effects were reported, as well as personality changes and/or changes in behaviour patterns.  

INDIAN WOMEN AND AIDS

considers the situation of women and HIV/AIDS in a country which is well into an AIDS epidemic. Important vectors of the HIV virus in India have been previously identified as migrant workers, long distance truck drivers, commercial sex workers, blood donors, and IV drug users. The new vector is the ordinary Indian mother.

 

Indonesian Lepers Still Face Discrimination, Despite Successes in Battling Disease The World Health Organization says the number of patients suffering from leprosy worldwide has fallen by nearly 90 percent over the last two decades. But the age-old ailment, also known as Hansen's disease, is still claiming new victims, and lepers continue to face a serious discrimination and ostracism.  

Islam, Irigaray, and the retrieval of gender

 

Women in countries such as Saudi Arabia, where they are not even permitted to drive cars, are objectively the victims of an oppression which is not the product of a divinely-willed sheltering of a sex, but of ego, of the nafs of the male. In this way, types of ‘Islamization’ being launched in several countries today by individuals driven by resentment and committed to an anthropomorphised and hence andromorphic God, appear to bear no relation either to traditional fiqh discourse or to the revelatory insistence on justice. This imbalance will continue unless actualised religion learns to reincorporate the dimension of ihsan, which valorises the feminine principle, and also obstructs and ultimately annihilates the ego which underpins gender chauvinism. We need to distinguish, as many Muslim women thinkers are doing, between the expectations of the religion’s ethos (as legible in scripture, classical exegesis, and spirituality), and the actual asymmetric structures of post-classical Muslim societies, which, like Christian, Jewish, Hindu and Chinese cultures, contain much that is in real need of reform.  

JAMA: Early Effects of a School-Based Human Immunodeficiency Virus Infection and Sexual Risk Prevention Intervention

To determine the short-term effect of a middle and high school-based human immunodeficiency virus and sexuality intervention (Rochester AIDS Prevention Project for Youth [RAPP]) on knowledge, self-efficacy, and behavior intention.

 

Jerry Falwell Quotes of Jerry Falwell  

Kerala Health and Decentralization Project
Case Study: Thrikkakkara Co-operative Hospital

The high cost of specialized private medicine had convinced many local people that they would never have access to affordable health care above the PHC. But in 1996 the People’s Campaign aroused hopes for a co-operative hospital.

 

Kerala, India

Efforts within that region to change economic levels

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Lack of Awareness of Hepatitis C Risk Among Persons Who Received Blood Transfusions Before 1990

Hepatitis C virus (Hepatitis C Virus) is the most common chronic bloodborne virus infection in the United States, with an estimated 2.7 million persons chronically infected.' The Centers for Disease Control and Prevention (CDC) recommends that persons with known risk factors for Hepatitis C Virus infection be identified and offered counseling and testing! This includes persons who may have been infected by blood transfusions received before July 1992, when multi-antigen anti-Hepatitis C Virus tests to screen donors came into use.To identify such

 

Leprosy and the law - Burning issue for a burning out disease Rights of people suffering from Hansen's disease have evoked renewed interest. One of the major causes could be the media attention to the claims for compensation filed by some of the Japanese people released from treatment of Hansen's disease.  

Lessons From the India Epidemic

The existence of several million female sexworkers along with millions of all other varieties in India show that we have a highly promiscuous way of life. We all pretend that we have the barest minimum of sexual life and only the "westerners" are indulging in sex. If it is true, then how come we, Asians have the two thirds of the world population? We should know that we are more active in sex and for that matter, more in 'penetrative' sex and for that matter, more in 'unsafe' sex among all the people in the world.

 

Local Planning and Democratic Participation as Mechanisms for Improving Third World Health Conditions Recently, however, the Kerala health situation faces many problems. The quality of government health services has declined. Rapid expansion of private sector health facilities has led to overmedicalization to produce profits. This is seen in the very high rate of caesarian births and increasing health expenditure. Despite many decades of successful immunization programs, Kerala has not achieved as much as it could in providing safe drinking water to much of the population. In general, infectious and parasitic diseases have not been fully conquered but the longevity is leading to the spread of chronic and old age diseases including diabetes, arthritis, various forms of cancer, hypertension, and the like  

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