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Stereotype perception and stigma

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It's better to light a candle than to curse the darkness

Miscellaneous Articles on the Stigma of Infectious Diseases

     

Main topics can be found within the left column; sub-topics and/or research reports can be found near the bottom of this page.  Thank you
     

"Among the findings and results of the study are the following:

Knowledge about STDs, HIV/AIDS and family planning is directly affected by exposure to adequate information. Misinformation, erroneous concepts and negative perspectives are important in the development of fears, rumors and taboos regarding STDs and HIV/AIDS. The influence of previous experience, gender and religion was also identified.

Stigmas and negative attitudes towards people with HIV/AIDS inhibit awareness of one's own risk.

The project resulted in the implementation of strategies for the strengthening and development of interventions in the area of IECC. "

—Qualitative Study on the Knowledge, Attitudes and Practices Regarding STDs and HIV/AIDS with Focus Groups from the STDs and HIV/AIDS Prevention Pilot Project

Level of Hepatitis C knowledge

"Only 16% of the surgical residents knew that there was a vaccine for hepatitis A. Though 84% knew that there was no vaccine for hepatitis C, the majority (56%) were unaware that Hepatitis C Virus was a sexually transmitted disease and 82% did not know about the possibility of it being transmitted perinatally. Of all the subjects, 93% knew that Hepatitis C Virus could be transmitted through blood transfusion and 88% knew about its transmission through a needle-stick injury. As well, 65% did not know that Hepatitis C Virus is initially asymptomatic. Knowledge about the complications of Hepatitis C Virus was adequate. Most of the residents were unaware of the physical properties of the virus, i.e., what destroys it, thus they incorrectly estimated the seroconversion rates with exposure to patients. This finding correlates with another study.23 Overall, there were significant gaps in the knowledge of the hepatitis C virus transmission.

Attitudes

With regards to attitudes towards Hepatitis C Virus, 42% of the respondents said they would tell their patients about their own Hepatitis C Virus seropositivity and 64% of residents did not believe in interferon therapy. Of all the respondents, 40% were in a habit of reading medical literature at least once a week."

—Hepatitis C: Knowledge, Attitudes and Practices among Orthopedic trainee surgeons in Pakistan

ADDITIONAL ARTICLES:

 

Document Name & Link to Document Description

File Size /pdf

Message of Hope There is a very big manifestation of energy going on in today’s society.... it is focused around "hate" in all of society. Hate through media, hate through sports, hate through comedy, hate through stupid acts of violence, hate through culture movements and hate through bad mouthing and making stupid racist comments... society has taken a stupid pill... and they are about to overdose.... this is the tipping point about to take place... all we know today.... is about to shatter in our faces.   

Naming Stigma Through Key Questions.

Method for determining if stigma exists in a community

2,701 kb pdf 

NATIONAL AIDS  PREVENTION AND CONTROL POLICY

In India the Human Immunodeficiency Virus/ Acquired Immunodeficiency Syndrome (HIV/AIDS) epidemic is now 15 years old. Within this short period it has emerged as one of the most serious public health problems in the country. The initial cases of HIV/AIDS were reported among commercial sex workers in Mumbai and Chennai and injecting drug users in the north-eastern State of Manipur . The infection has since then spread rapidly in the areas adjoining these epicenters and by 1996 Maharashtra , Tamil Nadu and Manipur together accounted for 77 per cent of the total AIDS cases with Maharashtra reporting almost half the number of cases in the country

 

Negating the stigma associated with certain diseases

The shame of their drug addiction and alcoholism means that they have put off seeking treatment as long as possible. In the process, they have destroyed their social support network, and many have comorbidities connected to their addiction.

 

On Stigma and its Public Health Implications

One of the curious features of literature concerning stigma is the variability that exists in the definition of the concept (Stafford and Scott 1986). In many circumstances investigators provide no explicit definition and seem to refer to something like the dictionary definition ("a mark of disgrace") or to some related aspect like stereotyping or rejection (e.g. a social distance scale). When stigma is explicitly defined many commentators turn to Goffman quoting his definition of stigma as an "attribute that is deeply discrediting" and that reduces the bearer "from a whole and usual person to a tainted, discounted one"

 

ORGANIZATIONS THAT FIGHT
DISCRIMINATION AND STIGMA

Each of the organizations below has as one of its goals the reduction of mental illness stigma.  For some, stigma reduction is a major focus of their activities; for others it is one of many functions.  Descriptions below are taken from the organizations' materials.  To learn more about an organization

 

Out of sight and out of mind

One of this year's themes for World AIDS Day is Out of sight - Out of Mind - Stigma and Complacency. The year 2000 saw the highest number of new infections since recording began. Improvements in treatments has lead to people with HIV living longer, with much improved health. Evidence points to increased complacency.

 

Overcoming the stigma of chronic illness-Strategies for ‘straightening out’ a spoiled identity This paper addresses the concept of chronic illness as a socially constructed experience of stigma.  The stigma of having a chronic illness affects the person’s self-concept, capacity to adapt to the illness and the quality of his/her social networks.  Social stigma is a de-legitimizing social process derived from both popular and medical views of chronic illness.  Based on research into the coping strategies of a range of people with long-term, serious chronic illnesses, the paper argues that Government health policies and services in Australia can best help people with chronic illness by supporting their self-help groups and community-based activities. 106 kb pdf
People with psoriasis 'shunned'

49% would not want to kiss or hug a person with psoriasis, 45% would not want to share a swimming pool with someone with psoriasis, 42% would not eat food prepared by someone who had psoriasis18% would not want to do any of these

 

PHENOMENOLOGY

Phenomenology is a movement in philosophy that has been adapted by certain sociologists to promote an understanding of the relationship between states of individual consciousness and social life. As an approach within sociology, phenomenology seeks to reveal how human awareness is implicated in the production of social action, social situations and social worlds

 

PLAGUE AND PUBLIC HEALTH IN RENAISSANCE EUROPE

This was a society which defined itself as Christian and recurrent plague changed religious practice, if not belief. Christians had long venerated saints as models of the godly life and as mediators before God, in this case an angry and vengeful one. A whole new series of "plague saints" (like St. Roch) came into existence along with new religious brotherhoods and shrines dedicated to protecting the population from plague. The recurrence of plague also affected the general understanding of public health. Beginning in Italy in the 1350s there were new initiatives aimed at raising the level of public sanitation and governmental regulation of public life. And, finally, by the sixteenth century a debate over the causes of plague spread in the medical community as old corruption theories inherited from Greece and Rome were replaced by ideas of contagion. The story of plague in Renaissance society is not merely a medical, religious or economic subject. To properly understand the impact of plague it is necessary to consider almost all aspects of society, from art and music to science.

 

Plagues Today--and Yesterday The World Health Organization has often warned that plagues and epidemics are only one plane-ride away. This was certainly true for AIDS thirty years ago, and has also been the case with SARS. Talking about plagues and diseases is not the pleasantest thing to read on a lovely Santa Cruz summer day, but there are good reasons for understanding the prospects for us today and in the near future.  

Plight of the Untouchables

In China, few of the increasing number of people infected with the AIDS virus identify themselves publicly. If word leaks out that a person has contracted the virus, whether or not AIDS symptoms are apparent, dire consequences follow. School officials bar infected students from classes. Supervisors summarily fire infected employees. Close friends and neighbors join with local officials to expel the infected person and his or her family from the community.

 

Positive Stigma: Examining Resilience and Empowerment in Overcoming Stigma

Considering the weight of the consequences associated with stigma, stigma research has understandably focused on the detrimental effects of stigmatization, paying attention to how stigmatized individuals are devalued, exposed to prejudices, and negatively stereotyped (Crocker and Quinn 2000). As a result, this body of work paints a grim picture suggesting that targets of stigma are doomed to lives of rejection, despair, and failure. Pdf 71 kb
Prejudice from Thin Air: The effect of Emotion on Automatic Intergroup Attitudes Two experiments provide initial evidence that specific emotional states are capable of creating automatic prejudice toward outgroups.  Specifically, we propose that anger should influence automatic evaluations of outgroups because of its functional relevance to intergroup conflict and competition, whereas other negative emotions less relevant to intergroup relations should not. 162 kb pdf

Preventing Discrimination and Reducing Stigma and Isolation

In order to provide better access to health services for people with hepatitis C, it is particularly important that the discrimination common in health care settings is acknowledged and actively challenged

413 kb pdf

REFRAMING WOMEN'S RISK: Social Inequalities and HIV Infection

Social inequalities lie at the heart of risk of HIV infection among women in the United States. As of December, 1995, 71,818 US women had developed AIDS-defining diagnoses. These women have been disproportionately poor, African-American, and Latina. Their neighborhoods have been burdened by poverty, racism, crack cocaine, heroin, and violence.

 

Religious Leaders

As religious people there is a call to respond with love to everyone, especially those who are suffering.  People living with HIV/AIDS have many physical, emotional and spiritual needs.  However, PWAs are frequently afraid to approach their religious leaders for fear of facing condemnation, rejection and judgment, with the result that may lack the spiritual care and support they need and deserve

Pdf 410 kb

Report of the National Conference on Human Rights and HIV/AIDS

HIV/AIDS  is not merely a medical problem: the manner in which the virus is impacting upon society reveals the intricate way in which social, economic, cultural, political and legal factors act together to make certain sections of society more vulnerable. The epidemic exposes the method and the impact of marginalisation and inequality in clear terms. Marginalised groups in our society have little or no access to basic fundamental and Human Rights such as food, medical services and information. Many of these groups are ostracised by society at large, and their lifestyles criminalized, making it practically impossible for them to participate in mainstream processes whereby they could demand their rights. Coupled with this dismal situation, there is minimal awareness about HIV and no real options for safer lifestyles. The stark reality of the HIV/AIDS epidemic is thus that people are becoming HIV positive because they have no access to basic fundamental Human Rights. For the same reasons, the impact of infection is a lot graver for those with no access to rights. It is time to recognise this link between marginalisation, Human Rights and vulnerability.

 

Rethinking Rehabilitation I wish it were otherwise, but scientific evidence is sorely lacking to support the effectiveness of rehabilitation programs for criminal offenders. It is similarly lacking to support the effectiveness of most programs aimed at treating conditions that exacerbate crime, such as substance abuse and dependence. Although a limited menu of behavioral and pharmacological treatments have shown small to moderate effects among offenders when administered under controlled research conditions, those effects tend to decline rapidly soon after criminal justice supervision is withdrawn. Pdf 412 kb

Review: Health care research

The HIV/AIDS epidemic has caused enormous strains on health systems, whilst home-care of the sick, as well as the increasing number of orphans has also put a strain on families and local communities.

 

     

ROLE OF THE COMMUNITY (CBOs, NGOS/YMCA)

STDs, including HIV/ AIDS, spread fastest where there is poverty, powerlessness and social instability. The disintegration of community and family life in refugee situations leads to the break-up of stable relationships and the disruption of social norms governing sexual behaviour. Women and children are frequently coerced into having sex to obtain basic needs, such as shelter, security, food and money.

 

Rooting Out AIDS-Related Stigma and Discrimination

A debate over how best to weed out AIDS-related stigma and resulting discrimination is growing within international health circles, as experts try to address these stubborn obstacles to HIV/AIDS prevention and treatment. While there is increased consensus that HIV/AIDS programs must tackle these issues directly, researchers have yet to find an effective means of tracking changes in attitudes toward infected people.

"You have to recognize which kinds of stigma and discrimination are harmful for disease control," explains Dr. James W. Curran, an AIDS epidemiologist and professor at Emory University in Atlanta. "It depends on the country; it depends on the laws, the values, the particular subculture. The issues have to be identified and then they have to be combated. It's like weeds in a garden; you have to keep pulling."
 

School-related Issues Among HIV-Infected Children

Only 3% of school-age children were too ill to attend school, and almost all were enrolled in public schools. The number of HIV-infected children reaching school age will continue to grow, and public schools will bear the responsibility for educating these children. Health care providers will increasingly be called upon for guidance by both educators and families to assure that HIV-infected children receive the best education possible.

 

Sexual Prejudice:
Motivations

A variety of motivations underlie sexual prejudice. One way to understand those motives is to ask how a particular heterosexual's antigay attitudes benefit her or him psychologically.

 

Shaking off 'shame' In a civilized society, people should not be scared to talk about their ailments -- especially when the illness may have been contracted from medical product infected with a potentially fatal virus. Yet in Japan, between 1980 and 2001, an estimated 10,000 people may have been infected with the hepatitis C virus (HCV) after being injected with a tainted blood coagulant during labor or surgery -- but most choose to keep their condition secret.  

Situation analysis of discrimination and stigmatization against people living with HIV/AIDS in West and Central Africa

The documentation of cases of discrimination and stigmationization was facilitated by PLWHA, their families, Ngos, and associations of support and defense of the rights of people infected and affected by the epidemic, who enabled us to give a voice and human face to AIDS

1,437 kb pdf

Social Inequalities & infectious diseases

Although many who study emerging infections subscribe to social-production-of-disease theories, few have examined the contribution of social inequalities to disease emergence.

Pdf 217 kb

STEREOTYPES IN PERCEPTION OF IDEAL BODY SIZE FOR DIFFERENT ETHNICITIES This study was designed to assess whether or not stereotypes exist as to what body type is considered acceptable for White women and if this differs from what is considered acceptable for Black women. 69 college students participated in the study (27 males and 41 females). Of the participants were 47 White, were 11 Black, and 10 were Other. They were shown slides of both Black and White women of varying sizes and asked to record their perception of each woman’s satisfaction with her body. It was hypothesized that all participants will rate overweight White women as significantly more dissatisfied with their bodies than Black women of the same size. Participants generally rated heavier Black women as more satisfied with their bodies than White women, but rated both very obese and very skinny women as being very dissatisfied with their bodies, regardless of the race of the woman. The results showed that stereotypes do indeed exist, but not at extreme weight levels.  
Stigma and Acceptance of Persons with Disabilities We explore this critical aspect of the social context by investigating employee acceptance of a coworker who has a disability.  We conceptualize acceptance specifically in terms of an incumbent employee’s attitude toward a coworker who has a disability, perceptions, of fairness of accommodations the coworker receives, and employment judgments about that coworker (with respect to hiring, promoting, and retaining. 144 kb pdf

Stigma and AIDS: Three Layers of Damage

Stigmata associated with HIV/AIDS can be organized into three layers

 

Stigma and Discrimination Defined [Erving] Goffman defined stigma as an "attribute that is deeply discrediting" that reduces the bearer "from a whole and usual person to a tainted, discounted one." Since Goffman, alternative definitions have varied considerably. Two reasons for this variation are that the concept has been applied to an enormous array of different circumstances -- from schizophrenia to exotic dancing -- and that it has been studied from the perspective of many disciplines. We attempt to advance the study of stigma by proposing a definition that encompasses these differences and that attends to important critiques noting that much theory about stigma is uninformed by the lived experience of the people being studied and that research on stigma has an individualistic focus, viewing stigmas as something in the person rather than a designation that others affix to the person.  

Stigma and discrimination is the theme

From the moment scientists identified HIV and AIDS, social responses of fear, denial, stigma and discrimination have accompanied the epidemic. Discrimination has spread rapidly, fuelling anxiety and prejudice against the groups most affected, as well as those living with HIV or AIDS.

 

Stigma and the SPNS YMSM of Color Initiative "The mark of shame is found everywhere, not just while dealing with HIV. It starts at home, where people damn the less fortunate for either having a poor education or struggling to make dead ends meet by any means possible." The above words, spoken by an outreach worker whose job is to persuade young men who have sex with men (YMSM) to be tested for HIV and to access medical care, neatly captures how stigma can affect the work of those trying to slow the spread of the disease.  
Stigma as a Barrier to Recovery: Adverse Effects of Perceived Stigma on Social Adaptation of Persons Diagnosed With Bipolar Affective Disorder

Concerns about the stigma associated with mental illness reported by patients during an acute phase of bipolar illness predicted poorer social adjustment seven months later with individuals outside the patient's family. Greater attention to patients' concerns about stigma is needed from both researchers and clinicians.

 
Stigma as a Barrier to Recovery: The Consequences of Stigma for the Self-Esteem of People With Mental Illnesses One of the most tragic consequences of the stigma of mental illness is the possibility that it engenders a significant loss of self-esteem—specifically, that the stigma of mental illness leads a substantial proportion of people who develop such illnesses to conclude that they are failures or that they have little to be proud of.  

Stigma, Discrimination and the Conspiracy of Silence

Stigma and discrimination fuel the HIV/AIDS epidemic by creating a culture of secrecy, silence, ignorance, blame, shame and victimisation, says the International Council of Nurses (ICN).  "Stigma prevents communities from addressing HIV/AIDS with the appropriate health care services, legal and educational strategies," declared ICN president Christine Hancock. "What stops them is HIV prejudice

 

STIGMA EXAMINE YOUR OWN ATTITUDE What is stigma? Why is it that being stigmatized in some way carries an assumption of something negative. The word itself – STIGMA- seems to sound and feel somewhat ugly. With addictive disorders the meaning of stigma is multiplied one hundred times fold and it is tremendously shame based. That’s right – shame. You see, I’m a recovering alcoholic/addict and I know what shame is. Coming into treatment I’ve brought with me a bag of regretful, shameful episodes and had hoped that by sharing them with my treatment brethren and therapeutically resolving them through clinical assistance, the burdens of shame would disappear. However, due to the high expectations of abstinence being the measuring stick of success, any relapses would once again reintroduce all of the baggage of my past. Pdf 82 kb

Stigma, HIV/AIDS and Prevention of Mother-to-Child Transmission

For some time now, HIV/AIDS-related stigma has been a major stumbling block in addressing HIV prevention, treatment, and care worldwide. In mid-2001, the Panos Institute Global AIDS Programme and UNICEF initiated a pilot project to explore the complexities of this stigma in greater depth. The long-term aims of this work were to promote greater understanding among policymakers and non-governmental organisations (NGOs) of the causes, expressions, and impact of such stigma and what action might be taken to reduce it.

 

STIGMA IN GLOBAL CONTEXT: MENTAL HEALTH STUDY The public health ramifications of not knowing the underlying workings of stigma are costly.  According to the Surgeon General of the U.S., stigma is the “most formidable obstacle to future progress in the arena of mental illness and health” (1999:3).  Similarly, the WHO and the World Psychiatric Association mark public stigma and discrimination as the critical barrier to the appropriate care and inclusion of persons with MI in society, and as the “chief nemesis” to improving and assuring the quality of life for persons with severe mental illness  
Stigma, shame, and blame experienced by patients with lung cancer: qualitative study Participants experienced stigma commonly felt by patients with other types of cancer, but, whether they smoked or not, they felt particularly stigmatised because the disease is so strongly associated with smoking. Interaction with family, friends, and doctors was often affected as a result, and many patients, particularly those who had stopped smoking years ago or had never smoked, felt unjustly blamed for their illness. Those who resisted victim blaming maintained that the real culprits were tobacco companies with unscrupulous policies. Some patients concealed their illness, which sometimes had adverse financial consequences or made it hard for them to gain support from other people. Some indicated that newspaper and television reports may have added to the stigma: television advertisements aim to put young people off tobacco, but they usually portray a dreadful death, which may exacerbate fear and anxiety. A few patients were worried that diagnosis, access to care, and research into lung cancer might be adversely affected by the stigma attached to the disease and those who smoke  

Stigma, Race, and Disease in 20th Century America: An Historical Overview

The first he called stigma deriving from physical deformities (and we might add to, physical infirmity).  Second, he suggested that stigma was often associated with perceived “blemishes of individual character” which could include anything from “mental disorder” and “homosexuality” to “radical political behavior.”  Third, Goffman designated “the tribal stigma of race, nation, and religion” which are “transmitted through lineages” and possessed equally in all members of a family. Thus, group membership and group identity could be (in themselves) significant sources of stigma. 

 

Stigma, Threat, and Social Interactions Many theorists have explicitly or implicitly woven stigma into their explanations of stereotyping, prejudice, social justice, and social identity. Researchers have accumulated a wealth of information regarding the impact of stigmatized others (or “targets”) on affective and cognitive processes of perceivers and a more modest but substantial amount of information regarding the impact of a stigma on the bearer.  Researchers have also accumulated much knowledge on the social identity of the stigmatized, the consequences of membership in stigmatized groups, and coping with stigma  
Stigma of Disease Persists; Residents of Macon's Rainbow Center Recount Slights Fambro and James Baker, a Baptist preacher and substance-abuse counselor at the Rainbow Center, both pointed to instances where family members had turned their backs on HIV/AIDS patients. "[They] feed them out of paper plates," Baker said. "They don't want them in the house, they don't want to touch anything they touch."  

Stigmatization & Discrimination

The AIDS has become synonymous with stigma, ostracism, repression and discrimination, as individuals affected by HIV have been rejected by their families, their loved ones and their communities. This rejection holds as true in the rich countries of the north as it does in the poorer and developing countries of the south. 

 

Strategies for reducing stigma toward persons with mental illness Corrigan and Watson have identified three approaches for reducing stigma: protest, education, and contact. Although these approaches have promise, they are not without weaknesses. A potential disadvantage of using protest (i.e., telling the public to stop believing negative views about mental illness) is that it may actually increase, rather than decrease stigma. In fact, research has shown that instructing individuals to ignore or suppress negative thoughts and attitudes towards a particular group can have paradoxical rebound effects; stigma will be augmented rather than reduced  
Strategies for working on the theme “stigma” Often stigma is not due to the presence of the Human Immunodeficiency Virus. Instead it is due to a whole series of assumptions about what the presence of the virus implies. These assumptions can relate to class-status, sexual morality, hygiene, gender, ethnicity and so on. So when a woman living with HIV is refused a job in Johannesburg, this may be as much to do with the employer’s social prejudices, as it has with the fear of the virus, and the workers long-term health prospects.  

Striking Lack of Awareness

"People with hepatitis C infection deserve the same tools as those with HIV so that they can become experts about their virus," explains Michael Marco in the introduction to TAG's latest analysis of hepatitis C research and treatment.

 

Surveillance, Social Risk, and Symbolism: Framing the Analysis for Research and Policy

Rather than focusing piecemeal on specific "barriers" to testing and care, an appreciation of the surveillance debate in context suggests a positive undertaking in public health policy to provide the conditions of opportunity, information, motivation and confidence that people with HIV need to accept an effective program of early intervention.

 

The 1832 Cholera Epidemic in New York State:19th Century Responses to Cholerae Vibrio

In all probability, most New Yorkers, if they had been asked in 1831-2 what they believed to have been cause of cholera, would have answered that cholera/disease was some form of righteous consequence which afflicted those who were least likely to be in God's grace. As further proof they would cite that Cholera most often affected those persons who lived dissolute, alcoholic, drug related, sexually excessive, and filth ridden lives; cholera's victims were simply being punished by God. It was the consequence of sin and "was the inevitable and inescapable judgment" of the Divine Power. "Cholera was a scourge not of mankind but of the sinner."

 

The Enigma of HIV/AIDS-related Stigma HIV/AIDS-related stigma is understood as a dynamic, multifaceted phenomenon that emerges from the intertwinement of human motivations, social structures, discourses and power relations. This understanding of stigma implies taking a broad approach when responding to stigma, calling attention to the importance of involving all levels of  the community. Community psychology and community counselling provide suitable frameworks for such an approach, as they emphasize local adaptation, empowerment and action research. Because the severity of the HIV/AIDS-epidemic requires urgent response, research and action need to be integrated. Ethical and methodological issues pertaining to the understanding, alleviation and prevention of HIV/AIDS-related stigma in Sub Saharan Africa are taken into consideration.  Pdf 712 kb
The Face of AIDS Through a Child’s Eyes One of the tragic side effects of poverty is hopelessness.  And when you add a disease like HIV/AIDS on top of poverty, hopelessness is compounded to the point of abject despair.  “This disease really brings out who we are as Christians.” 478 kb pdf

The Impact of Faith-Based organizations on HIV/AIDS prevention and Mitigation in Africa

FBOs often have a direct impact on social institutions, such as schools, which socialize people and change values over time. In addition, their jurisdiction often includes a number of areas closely connected to HIV/AIDS, such as morality, beliefs about the spiritual bases of disease, and rules of family life and sexual activity.

503 kb pdf

     
The Impact of Stigma on Service Access and Participation Research has shown that the psychiatric symptoms, psychological distress, and life disabilities caused by many mental illnesses are significantly remedied by a variety of evidence- based practices (EBPs).  Central to the success of these treatments is an obvious rule:  people with psychiatric disorders must participate in treatment to enjoy its benefits.  Unfortunately, research suggests many people who meet criteria for treatment, and who are likely to improve after participation, either opt not to access services or fail to fully adhere to treatments once they are prescribed.  Health belief theorists have shown that a rational consideration of the costs and benefits of participating in specific treatments will directly impact whether a certain route of intervention is pursued.  A significant cost to engaging in mental health treatment is the stigma associated with it.  Many people choose to not pursue mental health services because they do not want to be labeled a .mental patient. nor do they wish to suffer the prejudice and discrimination this label entails. Pdf 132 kb
THE KNOWLEDGE AND ATTITUDES OF PHYSIOTHERAPISTS TOWARDS PATIENTS WITH HIV/AIDS IN THE LUSAKA PROVINCE, ZAMBIA. With the increase in the number of persons suffering from HIV/AIDS, physiotherapists are often required to treat these patients who present with respiratory and neurological complications. Although physiotherapists are at a lower risk of HIV infection in the workplace than nurses and doctors, it is necessary to determine their knowledge and perceptions of the risks, fears of HIV transmission and their attitudes towards patients with the disease. The aim of the study was to determine the physiotherapists’ knowledge of, and their attitudes towards patients with HIV/AIDS. Pdf 925 kb
THE MEANING AND CONSEQUENCES OF PERCEIVED DISCRIMINATION IN DISADVANTAGED AND PRIVILEGED SOCIAL GROUPS The subjective meaning and consequences of perceived discrimination depends on the position of one's group in the social structure. For members of disadvantaged groups, attributions to prejudice are likely to be internal, stable, uncontrollable, and convey widespread exclusion and devaluation of one’s group. For members of privileged groups, the meaning of attributions to prejudice is more localized. Because of such meaning differences, attributions to prejudice are considerably more harmful for the psychological well-being of members of disadvantaged groups than they are for members of privileged groups. According to the Rejection-Identification Model (Branscombe, Schmitt, & Harvey, 1999), members of disadvantaged groups cope with the pain of attributions to prejudice by increasing identification with their disadvantaged group. We conclude with an exploration of the social contextual factors that can affect how the disadvantaged cope, and a discussion of the challenges facing future research on attributions to prejudice.  

The Middle-Class Plague: Epidemic Polio and the Canadian State, 1936-1937

Until the Salk and Sabin vaccines were introduced in 1955 and 1962, respectively, paralytic poliomyelitis was one of the most feared diseases of twentieth-century North America. Indeed, during the two or three decades before 1955, parents told their children to "to regard [polio] as a fierce monster that lurked in the damp hollows of their experience," and personified the disease as "a grim terror... more menacing, more sinister than death itself."(1) This frightening imagery, generated and magnified each summer -- "polio season" -- by the popular press, shaped a unique Canadian response to this disease

 

The Moral Tragedy of Chronic Illness This simple question presents some of the most profound ethical questions raised when an illness is chronic. And it also reveals some of the uniquely problematic and disturbing aspects of America's utter failure to deal with the realities of chronic illness.  
The Muslim View Of Homosexuality The article begins with the fact that there are gay Muslim groups just as adamant as their Christian and Jewish counterparts in declaring that their holy scriptures and religious philosophy do not oppose homosexuality. This argument is directly challenged by Dr. Yusuf Al-Qaradawi, described by El-Awady as a highly esteemed Islamic scholar. Al-Qaradawi states that Islamic beliefs are squarely against gay relationships because Allah created opposites to attract including the attraction between man and woman as the means to continue the existence of the human species. He then goes on to quote several passages from the Koran:  

The Plague of Our Time: Societal Responses to AIDS

Nearly every major infectious disease has created not one but two epidemics: the illness itself and society's reaction to it. Following initial denial there is hysteria and a search for a scapegoat. The fear of infection and the ignorance of its cause have often led to uncaring and even barbaric practices.  
The Role of Religious Leaders in Reducing Stigma and Discrimination Religious leaders have a unique catalytic role to play in addressing stigma and discrimination within communities.  Religious leaders can influence a community’s response.  Unfortunately, many religious leaders have spoken in judgment against HIV/AIDS equating it to sin that afflicts un-believers and those who have fallen short in their morals.  Ironically, religion is full of hope for those who suffer and this can be translated into action to support those infected and affected by HIV/AIDS.  
The Root Of Homophobia As is the case with racism, numerous and complex societal factors contribute to homophobia. Moreover, as with racism, homophobia is based on prejudice towards those who are different. The primary source of homophobia in most Western nations seems to be the Judaeo-Christian religious tradition of opposition to homosexuality, justified by certain passages in Scripture (although in recent years certain "progressive" branches of Protestantism and Judaism are increasingly accepting of homosexuality). From its roots in religion, homophobia has institutionalized itself in the law (in many states one can be legally fired for being homosexual), psychology (until 1980, homosexuality was deemed a mental disorder by the official diagnostic manual of psychology, the Diagnostic and Statistical Manual of Mental Disorders), the military (unlike any other minority, avowed homosexuals may not enlist or serve in the armed forces) and popular culture (homosexuals until very recently were usually depicted in movies and on television as either depressed, diseased, deranged, or preying on children).  

The Study of Potentially Stigmatizing Condition: An Epidemiolobic Perspective

That various medical conditions or diseases and behaviors are stigmatizing within human society is attested to by numerous early written works, including the Bible.  In the Old Testament, a skin disease commonly believed to have been leprosy is clearly portrayed as a divine punishment for moral lapses and as a cause for removal from society and social isolation.  Some conditions, such as leprosy, appear to have been severely stigmatizing in virtually every known culture and time period for which evidence exists.  Other conditions and behaviors, however, such as mental retardation and abuse of women, have almost certainly been met by widely varying degrees of approbation or acceptance in different cultures and at different times in the history of or by different strata of the same culture.

 

The tendency to stigmatise This time-honoured propensity has probably served humankind and its ancestors well in the service of species and related personal survival. Such biological mechanisms as those subserving immediate survival, the quest for food, reproduction and related territorial needs are presumably its foundation. Moreover, the crudity of categorisation and labelling of related perceived possible threats needs, constitutionally, to be safely over-inclusive, before juggling the consequent options of relating to, coming to dominate, fleeing from or ignoring the source  

Through the Looking Glass: The health and socio-economic status of hepatitis C positive Transfusion Recipients

This study deals with the socio and economic impact of transfusion recipients and what occurs to them over time

305 kb pdf

Toward an Understanding of Stigma in the Lives of People With Mental Illnesses Power Point Presentation 130 kb

Towards a theory of disease stigma

 

As we have seen, there are problems with current theories of disease stigma. The literature on HIV/AIDS stigma tends to conflate the causes, functions and effects of stigma and reveals a continuing tension between individual and social explanations for the phenomenon. The conceptual inflation of stigma has resulted in a conflation of cause and effect – of stigma and discrimination. Also, the focus on finding generic ‘social control’4 explanations for stigma in the sociological literature, or on measuring the ‘amount’ of stigma through some generic measure in the psychological literature, have distracted us from the task of understanding the diversity of stigma in different contexts. To address these problems, we use theoretical work drawn from studies of racism and from ‘blaming’ models of disease stigma to define the concept more rigorously and to provide a means of understanding how stigmatisation operates as a process and how variation might occur. This will help us to research and address HIV/AIDS stigma and discrimination more effectively. Pdf 188 kb
UKRAINE-Drug policies, etc.pdf Although data are incomplete, the Ukraine is apparently experiencing a dramatic but increase in HIV cases, with the majority attributable directly or indirectly to injection drug use. 75 kb pdf
Understanding HIV and AIDS-related Stigma and Discrimination in Vietnam Findings show that women living with HIV and AIDS tend to be more highly stigmatized than men due to a combination of the commonly-held assumption that HIV is acquired through immoral means, and social expectations that women should uphold the moral integrity of family and society while men can be more self-indulgent.  While women tend to be “blamed” for acquiring HIV and AIDS, men are often forgiven by family and society. 651 kb pdf
Understanding Stigma and Discrimination PowerPoint Presentation Pdf 264
Welfare Fraud and Welfare Stigma The paper argues that welfare fraud and welfare stigma, apparently two phenomena of opposite nature, may be modeled with the aid of a single apparatus, thus allowing a comparative investigation of participants’ take-up of welfare benefits. 71 kb pdf
When religion becomes a weapon of mass destruction The report suggests the soaring infection rates among young women are fueled by religious teachings that require women to remain ignorant of sex and sexuality until they marry. And once they marry, the religious prime directive is procreation, which means unprotected sex. Confirmation of the trend came from New York Times writer Nicholas D. Kristof in the March 30, 2005, story, “When Marriage Kills,” he filed from Zambia and Zimbabwe: “The stark reality is that what kills young women here is often not promiscuity, but marriage. Indeed, just about the deadliest thing a woman in southern Africa can do is get married.”  

When the hate comes from 'churches'

 

Rosemary Radford Ruether, professor of applied theology at the Garrett Evangelical Theological Seminary at Northwestern University in Evanston, Ill., estimates there are some 50,000 "core" adherents who call themselves "Identity Christians." But writing in the Chicago Tribune recently, she also noted that "they have recently targeted alienated white youth in affluent suburbs and have considerable presence through a number of Web sites and the promotion of racist music aimed at the young."  

Which Came First: Social Prejudice or Fear of Disease?

 

"Survey of Canadian dentists reveals that 16% would refuse to treat HIV+ patients," reads a story reported in the April issue of the American Journal of Public Health.[1] The only good news in the survey is that people with HIV infection are better off than those known to be injecting drug users (35% would refuse to treat them) or infected with hepatitis C (36% would not treat).  Access to care has been a core policy concern in the HIV epidemic since the disease was first recognized nearly 20 years ago. Early on, we were moved to impassioned public advocacy by stories of dinner trays left undelivered outside hospital rooms; dying patients surrounded by what looked like lunar exploration teams in full protective gear; reports of dozens of calls made to secure one appointment for dental care; nursing homes saying "we can't manage care that complicated." The pain of the disease was magnified by the pain of rejection, not only on the part of an uninformed public but also by those supposedly committed to the care of all those in need.  

Who cares for family and friends?: providing palliative care at home

This study describes the care provided by family and friends for palliative care patients at home including the provision of practical assistance in a range of activities and domestic chores. It also examines the changes that occur in the care provided by family and friends with the introduction of a consultative palliative care service. Finally, it examines the effect of a palliative care service on carers both in terms of their role relationships and the impact on their health and well-being.

 

Why Reach Out to Persons with AIDS?

 

Leprosy was a disease of unparalleled implications in first-century Palestine. It was a horrible disease; it spread slowly until it made the body ugly and robbed it of vitality. It was a dreaded disease; it meant separation from social life and from contact with all non-lepers. Leprosy was a deadly disease. Because it was incurable and eventually fatal, it made its victims the living dead. And leprosy was a “sinners’” disease—not in that it was contracted through personal sin, but because it formed an apt metaphor for the nature of sin.  

Why Religion Matters: The Impact of Religious Practice on Social Stability

 

Religious practice appears to have enormous potential for addressing today's social problems. As summarized in 1991 by Allen Bergin, professor of psychology at Brigham Young University, considerable evidence indicates that religious involvement reduces "such problems as sexual permissiveness, teen pregnancy, suicide, drug abuse, alcoholism, and to some extent deviant and delinquent acts, and increases self esteem, family cohesiveness and general well being.... Some religious influences have a modest impact whereas another portion seem like the mental equivalent of nuclear energy.... More generally, social scientists are discovering the continuing power of religion to protect the family from the forces that would tear it down."  

World AIDS day 2003

 According to UNAIDS estimates there were 37 million adults and 2.5 million children living with HIV at the end of 2003, and during the year 5 million new people became infected with the virus. Around half of all people who become infected with HIV do so before they are 25 and are killed by AIDS before they are 35

 


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